Israel: Undocumented migrants living with HIV receive drugs no longer administered to Israelis

Undocumented HIV carriers in Israel receive treatment ‘worse than third world countries,’ if any at all

Those treated by the Health Ministry program speak of severe side effects, and doctors note drugs they receive are no longer administered to Israelis.

Hundreds of undocumented HIV carriers in Israel receive inadequate treatment and outdated medications that sometimes cause severe side effects. Moreover, they are unable to access treatment for their condition and related infections or receive sufficiently close monitoring. Carriers are admitted to the Health Ministry’s treatment program only after their condition deteriorates, and their immune system is already dysfunctional.

One source familiar with the situation said the plan suffers from “quality of treatment and a management level worse than third world countries.”

According to the latest Health Ministry data from 2019, 130 out of 430 new carriers diagnosed that year were undocumented and without health insurance.

Doctors and professionals in the field say the treatment regimen for undocumented HIV carriers is very narrow, and far removed from the quality provided to Israeli carriers, who enjoy treatment that is among the most advanced in the world. As a result, physicians often find themselves helpless when treating patients.

D., 50, is an undocumented migrant who arrived in Israel from Ethiopia about 25 years ago. She was diagnosed HIV-positive 19 years ago, when she was five months pregnant. In 2016, after years of being treated on a voluntary basis, she started to receive treatment from the Health Ministry, in the course of which, she said, she was given medications that weren’t suitable for her and caused multiple side effects.

“My body does not react well to the pills,” she related. “They cause me pains, exhaustion and an accelerated heartbeat. When I take them I am afraid to leave the house and I simply prefer to forgo that on certain days.”

D. said that she asked for medications appropriate for her but her request was denied because they are not included in the program. “I was told that if I want to buy them privately it will cost me 6,000 shekels [$1,850] a month. I don’t have that amount.” Now she is being treated irregularly. “The doctor gave me what there is, what she manages to get hold of,” she said, referring to the more expensive medications. “I don’t know which medication I will be receiving in another month or two. Sometimes I just switch treatment.”

D. is also ineligible for regular follow-ups. Undocumented persons are entitled to a test that monitors their immune system activity only once a year, whereas Israeli patients are entitled to a quarterly test. In the meantime, neither D. nor her attending physician know how effective the treatment is. In addition, she is not entitled to treatment to be treated for for side effects and accompanying complications.

“I don’t have a regular job and have no way to pay for private treatments,” she said. “I go to clinics in Jerusalem’s Old City because it’s cheaper there. I want to live, but I am not getting what I need.”

“It’s not just a difference between life and death. It’s a difference between life and death in agony,” said Dr. Itzik Levy, director of the AIDS clinic at Sheba Medical Center, Tel Hashomer. “The treatments currently given to undocumented carriers are ones that are no longer used – not even in third world countries.” In 2016, after a protracted struggle, the Health Ministry decided to offer treatment to undocumented HIV carriers. “The problem is that the quality of care and its administration is worse than in third world countries,” Levy claimed.

Levy said undocumented carriers are only entitled to outdated drugs that cause a long list of side effects, absent in the latest medications. “These are drugs that are not currently administered to any Israeli carriers – drugs with lower efficacy that lead to many side effects, such as anemia, weakness, increase in blood lipids, diabetes, and neuropsychiatric symptoms,” he asserted.

In addition, the program does not cover treatments for other complications and AIDS-related illnesses, which are caused by the disease or the side effects of its treatment. “They do not receive other drugs, including preventive ones. If you need to prevent disease or administer complex antibiotics – they aren’t eligible,” he said. “I face patients I cannot help. I have carriers who have fallen ill because of the drugs’ side effects or other reasons and had nothing for them. Their immune system deteriorated. In one case, a patient had a stroke and remained disabled for life. Another patient had lymphoma and died. These are things that could have been prevented with better treatment for HIV suppression.”

Dependent on leftovers

In 2016, the National Program for the Treatment of Undocumented HIV Carriers was launched, led by the Health Ministry’s department of tuberculosis and AIDS, designed to handle immigrant carriers, many of whom come from endemic countries, including refugees and migrant workers from Africa and carriers from the former Soviet-Union who overstayed their tourist visas and became undocumented migrants in Israel.

The program is designed and budgeted for the treatment of about 400 HIV carriers aged 18 and over who are in Israel for at least six months and lack health insurance. Candidates for the program were required to appear before a medical committee. S., 60, emigrated from Ethiopia in 1995 and was diagnosed HIV positive three years later. In 2006, he also fell ill with tuberculosis and a brain infection. He suffers from neural and bone damage. In his case, too, the treatment he’s getting through the program is insufficient.

“My treatment depends on what the doctor can get hold of,” he said. “The other medications I buy myself, costing me about a thousand shekels a month.”

K. 70, arrived in Israel from Ethiopia about a decade ago and was diagnosed as a carrier shortly afterward. She said that one of the two medications she receives as part of the program causes severe side effects. “The medication causes vomiting, loss of appetite, exhaustion and a serious rash all over the body,” she said. “That’s in addition to a chronic lack of iron. The new medications are better and don’t produce side effects, but I don’t know which medication I’ll get, or in what quantity. The pills will run out in another month and a bit, and I’m already stressed. I don’t know what will happen.”

One of the drugs that treats a significant proportion of undocumented carriers is called Zidovudine (AZT), approved for use in 1987. Another drug used on this group of patients is efavirenz (Stocrin). Both drugs cause severe and often fatal side effects. For these reasons, these drugs have been discontinued in most countries, including Israel.

“These are drugs with a lot of side effects that Israeli carriers have not received for more than a decade. Israeli carriers are treated with new-generation drugs that have almost no side effects, are effective against resistant viruses, but are more expensive,” said Levy. “This situation is forcing me to perform poor medicine. I have a patient in her sixties for whom I found a donation of two boxes of medicine that she needs and is not entitled to. Once she runs out her fate will be sealed unless we find more.”

Other senior AIDS physicians identified with the situation described by Levy.

“Treatment for Israeli citizens is second to none, including in Europe. Israeli carriers receive the most advanced, expensive, and unlimited treatment. We are talking about drugs that cost between NIS 4,000 and NIS 5,000 per month per patient. Cost is certainly a consideration,” said Dr. Hila Elinav, director of the AIDS medicine unit at Hadassah, and a board member of the Israeli AIDS Society. “Most patients do fine with the old drugs, but some have severe side effects or have developed resistant strands. We have no solution for them.”

She said this situation creates the need to source leftovers from Israeli patients. “This is a very problematic method, and I am constantly under pressure,” she said. In cases in which they don’t manage to obtain the right medications, she said, “I have to change the treatment, and that is absolutely not good.”

Other sources agreed that the existing treatment is problematic, but stressed that before the program got underway undocumented carriers received no treatment at all.

According to Dr. Dan Turner, Director of the AIDS Center at Ichilov Hospital, and Chairman of the Israeli AIDS Society, “The treatments given to undocumented carriers are the same treatments given to Israeli patients previously. We are talking about a relatively large number of pills and with a very high percentage of side effects.”

Looking back, he said, many Israeli patients who received the obsolete treatment survived and coped with the side effects. “Our big problem is the fact that a few dozen patients can’t receive the old treatment, whether due to resistance or because of various side effects, and we have no solution for them,” he said. “In some cases this reaches a condition that poses an immediate danger to their life.”

‘Scandalous’ threshold

Another problem professionals point out is the entry threshold to the program. Unlike Israeli carriers who are treated upon diagnosis, an undocumented carrier who tests positive will only be monitored and treated after their immune system activity falls below the set threshold. “The threshold for entering the program is a scandal and that is something that must change,” Elinav said. “It’s not just that people are at risk of developing a disease. They can infect others and this counters the goal of lowering the overall morbidity. Beyond that, untreated carriers come to hospitals with AIDS, and then their condition is much more difficult.” According to Turner, research shows that the earlier the treatment of carriers begins, the more their life expectancy increases, and the more AIDS-related illnesses and comorbidities decrease.

And yet, some professionals believe the program should be judged more broadly. “It is true that there is criticism of the program, but it should also be welcomed. The situation before was terrible. Today, the program helps most patients but needs improvements,” Turner added. “The program is welcome but there is still a lot to do.” According to the Ministry of Health, more than 500 carriers have been treated to date under the program. There are now about 350 people in the program, only a few of whom are being monitored, as they do not yet meet the criteria.

“The program is vital and helps hundreds of HIV carriers a year receive life-saving treatments. The number of undocumented carriers being treated has more than doubled since it was launched,” said Noga Oron, chairwoman of the Committee for the Struggle Against AIDS. “There is an urgent need to add new generation drugs to the program for those patients whose drugs don’t suit their needs.” A more effective program will reduce the burden on the health system because of unnecessary infections and hospitalizations. It is also proven that the HIV carrier that is treated optimally is not contagious at all, and therefore it is recommended that every person who is HIV-positive be treated as soon as possible,” said Oron.

The Health Ministry commented: “The use of medications other than those stipulated in the guidelines would raise the cost of the program by several million more shekels or would bring about a significant decrease in the number of patients who can benefit from the program. Israel is one of the few countries in the West that provides free antiviral monitoring and treatment for non-citizens without health insurance. The program operates on a strictly medical and humanitarian basis only. The medications are those recommended by the World Health Organization.”

It added: “At the same time, there is a small number of carriers whose treatment in the program is unsuitable (due to resistances), and they receive the medications in other tracks. This year again, the tuberculosis and AIDS department requested a special budget for which authorization has not yet been received. All told, the program is essential, both in terms of public health and on humanitarian grounds. However, the program is operating under challenging budgetary constraints, especially in the past few years.”

Russia: Bill proposing to abolish mandatory deportation of foreigners with HIV submitted for review

MP proposed to change legislation in favour of infected migrants

Translated from Russian via Deepl.com. For original article, please scroll down.

Fedot Tumusov, First Deputy Chairman of the State Duma Health Committee, has sent for review to the Russian Government a draft law proposing to abolish mandatory deportation of foreigners with HIV. The deputy deems it necessary to allow them to be treated in Russia at their own expense or at the expense of their home country. In his opinion, this would protect the rights of migrants with HIV and save money of the Russian tax payers, as emergency treatment in neglected cases costs the government more than 200 thousand rubles. The Ministry of Health has previously questioned whether it is cheaper to treat foreigners with HIV than to expel them from the country.

The deputy Fedot Tumusov (“Fair Russia”) proposed to cancel the rule on deportation of foreign citizens and stateless persons with HIV and allow them to be treated legally in Russia. He submitted the relevant bill (available to Kommersant) for review by the government. The current law “On Prevention of the Spread of Disease Caused by Human Immunodeficiency Virus in the Russian Federation” prohibits foreign nationals with HIV from entering Russia, their temporary stay, and residence. If foreigners who have been tested (not anonymously) are found to be HIV-positive, Rospotrebnadzor makes a decision on their undesirability to stay in the country. In the explanatory note, Mr. Tumusov points out that many foreigners with HIV, having received such an order, go into illegal status for many years.

Knowing that if they are officially diagnosed with HIV infection, they will be denied entry to Russia forever, migrants avoid such testing in every possible way, which contributes negatively to the epidemiological situation in Russia and countries of Eastern Europe and Central Asia,” the note said.

In 2015, following a ruling by the Russian Constitutional Court, a decree was issued prohibiting the expulsion of migrants with HIV if their spouse, children or parents are Russian citizens or foreigners with residence permits in Russia. However, according to the deputy, the amendment prevents the majority from legally residing in the country. Mr. Tumusov points out that the current legislation violates the rights of migrants to medical assistance and contradicts the State Strategy of the RF for counteraction of spread of HIV till 2030. Among other things, the Strategy stipulates that Russia shall assist HIV-positive foreigners in seeking medical assistance and provide social support to certain categories of population groups vulnerable to HIV infection.

Fedot Tumusov notes that migrants with HIV who refuse antiretroviral therapy often end up in hospitals and intensive care units “in a severe and neglected condition,” which increases the burden on the Russian budget.

Mr. Tumusov refers to the results of a study by the Expert Group on the Health of Migrants in the EECA Region (EEG), previously reported by Kommersant. The experts estimated that the cost of a set of examinations, treatment and services for one person for 21 days in the hospital is 228,572.6 rubles, while the annual outpatient HIV treatment and examination costs an average of 83,084 rubles. Fedot Tumusov also suggests organising treatment at the expense of the country of origin or the foreigner with HIV himself. According to Mr. Tumusov, the CIS countries, from where mass migrant workers come, now fully provide antiretroviral drugs to their citizens during their stay in the labour migration. Thus, the deputy emphasizes, the adoption of the bill would not require additional federal budget expenditures; on the contrary, it would save taxpayers’ money.

According to the Central Research Institute of Epidemiology, Rospotrebnadzor, 37,389 HIV-positive foreigners have been identified in Russia since 1985, when the first case of infection was detected, until the end of 2019. In the same time period, the number of Russians with HIV has reached 1,420,975. The EEG study draws attention to the high prevalence of HIV infection in Russia – 54.8 people per 100,000 population. In countries from which migrant workers come most frequently, the rate is much lower: 14.2 in Tajikistan, 13.2 in Kyrgyzstan and 7.2 in Azerbaijan. Vadim Pokrovsky, head of the Federal AIDS Center, told Kommersant earlier that in the late 1980s, when infection was found mainly in people arriving from abroad, there was “some sense” in examining them and sending them back home. Within a few years the number of Russians who were infected far exceeded the number of foreigners. However, the practice of deportation, according to the expert, was supported by “ura-patriots” who believed that in this way they were “saving Russia from HIV infection”.

According to the Russian Federation of Migrants (FMR), about 1,500-2,000 foreign nationals are diagnosed with HIV status each year when applying for a work permit.

“Based on this, one can assume that a lot of migrants who do not apply for a permit may also be diagnosed with the infection, but there is no data,” says Vadim Kozhenov, head of the MDF. According to him, MDF “in general” supports the initiative of Fedot Tumusov, because “modern means of HIV therapy can make a person absolutely safe for others.

The Ministry of Health did not comment on the deputy’s initiative. Earlier, the ministry said it did not agree with the conclusions of the REG about the economic benefits of treating migrants with HIV.


Депутат предложил изменить законодательство в пользу инфицированных мигрантов

Первый зампред комитета по охране здоровья Госдумы Федот Тумусов направил на отзыв в правительство РФ законопроект, который предлагает отменить обязательную депортацию иностранцев с ВИЧ. Депутат считает необходимым позволить им лечиться на территории РФ за свой счет или за счет их родной страны. Это, по его мнению, защитит права мигрантов с ВИЧ и сэкономит деньги российских налогоплательщиков, так как экстренное лечение в запущенных случаях стоит государству более 200 тыс. руб. В Минздраве ранее усомнились в том, что лечить иностранцев с ВИЧ дешевле, чем высылать из страны.

Депутат Федот Тумусов («Справедливая Россия») предложил отменить норму о депортации иностранных граждан и лиц без гражданства с ВИЧ и разрешить им легально лечиться в России. Депутат направил соответствующий законопроект (есть в распоряжении “Ъ”) на отзыв в правительство. Действующий закон «О предупреждении распространения в РФ заболевания, вызываемого вирусом иммунодефицита человека» запрещает иностранным гражданам с ВИЧ въезд в Россию, их временное пребывание и проживание. Если у иностранцев, прошедших тестирование (не на условиях анонимности), выявлена ВИЧ-инфекция, Роспотребнадзор выносит решение о нежелательности их пребывания на территории страны. В пояснительной записке господин Тумусов указывает, что многие иностранцы с ВИЧ, получая такое предписание, на долгие годы уходят на нелегальное положение.

Понимая, что при официальном выявлении ВИЧ-инфекции им навсегда будет закрыт въезд в Россию, мигранты всячески избегают такого тестирования, что вносит негативный вклад в эпидемиологическую ситуацию в России и странах Восточной Европы и Центральной Азии»,— говорится в записке.

В 2015 году, после соответствующего решения Конституционного суда РФ, вышло постановление, запрещающее выдворять мигрантов с ВИЧ, если у них супруг, дети или родители — граждане РФ или иностранцы с видом на жительство в России. Однако, по замечанию депутата, большинству данная поправка не дает возможности легально проживать в стране. Господин Тумусов указывает, что действующее законодательство нарушает права мигрантов на медицинскую помощь и противоречит Государственной стратегии РФ по противодействию распространению ВИЧ до 2030 года. Стратегия предполагает, в частности, что Россия будет оказывать содействие обращению ВИЧ-положительных иностранцев за медицинской помощью, а также оказывать соцподдержку отдельным категориям уязвимых в отношении ВИЧ-инфекции групп населения.

Федот Тумусов отмечает, что мигранты с ВИЧ, отказываясь от антиретровирусной терапии, нередко попадают в стационары и реанимационные отделения «в тяжелом и запущенном состоянии», что увеличивает нагрузку на бюджет РФ.

Господин Тумусов ссылается на результаты исследования экспертной группы по здоровью мигрантов в регионе ВЕЦА (РЭГ), о котором ранее рассказывал “Ъ”. Эксперты подсчитали, что затраты на комплекс обследований, лечения и услуг для одного человека продолжительностью 21 день в стационаре составляют 228 572,6 руб., в то время как годовое амбулаторное лечение ВИЧ-инфекции и обследование обходятся в среднем в 83 084 руб. Федот Тумусов также предлагает организовать лечение за счет средств страны исхода или самого иностранца с ВИЧ. По словам господина Тумусова, страны ближнего зарубежья, откуда массово прибывают трудовые мигранты, в настоящий момент полностью обеспечивают своих граждан антиретровирусными препаратами во время их пребывания в трудовой миграции. Таким образом, подчеркивает депутат, принятие законопроекта не потребует дополнительных расходов федерального бюджета, а, напротив, сэкономит деньги налогоплательщиков.

По данным ЦНИИ эпидемиологии Роспотребнадзора, в России с 1985 года, когда был обнаружен первый случай инфекции, до конца 2019 года выявлено 37 389 ВИЧ-положительных иностранцев. За это же время число россиян с ВИЧ достигло 1 420 975 человек. В исследовании РЭГ обращает внимание на высокую распространенность ВИЧ-инфекции в России — 54,8 человека на 100 тыс. населения. В странах, из которых трудовые мигранты приезжают чаще всего, показатель гораздо ниже: 14,2 — в Таджикистане, 13,2 — в Киргизии, 7,2 — в Азербайджане. Глава Федерального центра по борьбе со СПИДом Вадим Покровский ранее заявил “Ъ”, что в конце 1980-х, когда инфекция действительно обнаруживалась в основном у приезжающих из-за рубежа, в их обследовании и высылке на родину «был какой-то смысл». Уже через несколько лет число россиян—носителей инфекции значительно превышало число иностранцев. Однако практика депортации, по словам эксперта, поддерживалась «ура-патриотами», которые считали, что таким образом «спасают Россию от ВИЧ-инфекции».

По данным Федерации мигрантов России (ФМР), ежегодно в стране примерно у 1,5–2 тыс. иностранных граждан при оформлении трудового патента выявляется ВИЧ-статус.

«Исходя из этого, можно предположить, что у множества мигрантов, не оформляющих патент, также может быть выявлена инфекция, однако данных нет»,— говорит глава ФМР Вадим Коженов. По его словам, ФМР «в целом» поддерживает инициативу Федота Тумусова, так как «современные средства терапии при ВИЧ позволяют делать человека абсолютно неопасным для окружающих».

В Минздраве инициативу депутата “Ъ” не прокомментировали. Ранее в ведомстве заявили, что не согласны с выводами РЭГ об экономической выгоде лечения мигрантов с ВИЧ.

Russia: Deporting migrants with HIV from Russia is not only inhumane but also economically unprofitable

State asked to stop expulsion of migrants with HIV

Automated translation via Deepl.com – For original article in Russian, please scroll down.

Representatives of the Regional Expert Group on the Health of Migrants in the EECA region called the current practice of deporting migrants with HIV in Russia not only inhumane but also economically unprofitable. Treatment of neglected cases, when a person hides their status and lives illegally, out of fear of deportation, costs the state more than 200 thousand rubles, the experts estimate. At the same time, if the law allowed them to live and be treated – at their own expense or at the expense of the migrants’ home country, a course of annual therapy would cost about 90 thousand rubles. In 2016, the ECHR already demanded that Russia completely refrain from discriminating against HIV-positive foreigners, but since then, the legislation has not changed.

The Regional Expert Group on the Health of Migrants in the EECA Region (REG) assessed the potential economic benefits of not discriminating against foreigners with HIV-positive status in Russia. The authors of the study concluded that allowing migrants to live and be legally treated in Russia “is not only more beneficial from a humanitarian and epidemiological point of view, but also from an economic one.

A 1995 law prohibits foreign nationals with HIV from entering, staying and residing in Russia. If foreigners who have been tested not anonymously are found to be HIV-positive, Rospotrebnadzor makes a decision on their undesirability to stay in the country. Experts point out that for fear of deportation, many migrant workers hide their disease. They do not take antiretroviral therapy and, in their serious condition, end up in hospitals where they cannot, by law, be denied emergency medical care. The authors calculate that if a patient were to receive the necessary therapy, the cost of treatment would be 83,084 roubles a year, or about 6,924 roubles a month. They note that these costs “with certain legislative amendments” could be paid by the country of origin.

However, if a foreigner with HIV infection does not receive treatment and, as a result, develops complications, inpatient treatment for 21 days and an antiretroviral therapy course will cost 228,572.6 roubles. This treatment option is covered by the budget of the Russian Federation.

The authors draw attention to the high prevalence of HIV infection in Russia, 54.8 people per 100,000 population. In countries from which migrant workers come most frequently, the rate is much lower: 14.2 in Tajikistan, 13.2 in Kyrgyzstan and 7.2 in Azerbaijan. They also cite a recent study by the Russian Ministry of Finance on the impact of HIV on economic and demographic development in Russia. According to the study, the annual loss of society from the uncontrolled spread of HIV infection is about 200 billion roubles. The researchers note that “one of the characteristic features of the current stage of HIV infection in Russia is the expansion of the hidden epidemic among labour migrants who are forced to keep their HIV status secret”.

According to the Central Research Institute of Epidemiology of Rospotrebnadzor, 37,389 HIV-positive foreigners have been identified in Russia since 1985, when the first case of infection was detected, until the end of 2019 (these are those who have been officially tested). In the same time period, the number of HIV-positive Russians has reached 1,420,975. Vadim Pokrovsky, head of the Federal AIDS Center, told Kommersant that given the ratio, the influence of foreigners on the epidemiological situation “is not that great. He said that in the late 1980s, when the infection was indeed found mainly in people arriving from abroad, there was “some sense” in screening them and sending them home. Within a few years, the number of Russians who were infected outnumbered the foreigners, he continued, but the deportations were supported by “hooray patriots,” who believed they were thus “saving Russia from HIV infection. Now, according to Mr. Pokrovsky, the main problem is economic, as treatment is lifelong, expensive and it is unclear at whose expense migrants will receive it.

“In order to implement the proposals in the study, the legislation would need to be amended accordingly. There is no doubt that this will meet with a wave of controversy,” says Mr Pokrovsky.

In 2016, the European Court of Human Rights (ECHR) found Russia guilty of violating the rights of HIV-positive foreigners who were banned from entering and staying in Russia if they had the disease. The year before, following a ruling by the Constitutional Court, it was ruled that if a migrant’s spouse, children or parents are Russian citizens, he or she cannot be expelled. However, the ECHR insisted on a complete rejection of discrimination against HIV-positive persons. The ruling stated that Russia was the only CoE country and one of 16 countries in the world to deport foreigners solely on the basis of their HIV status.

Coordinator of charitable programmes of the Civic Assistance Committee Varvara Tretiak (listed by the Ministry of Justice as a foreign agent) argues that finding a migrant with HIV is almost impossible: people “just go into the shadows”, live and work illegally. The Committee more often has to interact with refugees with HIV-positive status. Ms. Tretiak tells the story of an Uzbek national who sought asylum in Russia after fleeing the country for fear of being prosecuted for homosexuality. He tried to obtain a work permit and underwent a medical examination to do so. However, after being diagnosed with HIV, the “road in the legal field”, according to Varvara Tretiak, was closed to him. As a result, he moved to a third country.

One of the authors of the report, researcher Daniil Kashnitsky of the HSE Institute for Social Policy, told Kommersant that the results of the study will be sent to Rospotrebnadzor, the Ministry of Health and the Interior Ministry. Rospotrebnadzor told Kommersant that legislation on migration policy issues has been “optimized” in recent years. The Ministry also stated that they had not made “any decisions regarding undesirability of stay (residence) of foreign nationals or stateless persons from March 15 until December 15, 2020. The Ministry of Health told Kommersant that the agency “raises big questions about both the methodology and conclusions of the study.


Государство просят отказаться от практики выдворения мигрантов с ВИЧ

Представители Региональной экспертной группы по здоровью мигрантов в регионе ВЕЦА назвали действующую в РФ практику депортации мигрантов с ВИЧ не только негуманной, но экономически невыгодной. Лечение запущенных случаев, когда человек из страха выдворения скрывает статус и живет нелегально, обходится государству более чем в 200 тыс. руб., подсчитали эксперты. При этом если бы закон позволял им жить и лечиться — за свой счет или за счет родной страны мигрантов, курс годовой терапии стоил бы около 90 тыс. руб. В 2016 году ЕСПЧ уже требовал от России полного отказа от дискриминации ВИЧ-инфицированных иностранцев, однако с тех пор законодательство так и не изменилось.

Региональная экспертная группа по здоровью мигрантов в регионе ВЕЦА (РЭГ) оценила потенциальную экономическую пользу от отказа от дискриминации иностранцев с ВИЧ-положительным статусом в России. Авторы исследования пришли к выводу, что позволить мигрантам жить и легально лечиться на территории России «выгоднее не только с гуманитарной и эпидемиологической, но и с экономической точки зрения».

Закон от 1995 года запрещает иностранным гражданам с ВИЧ въезд в Россию, их временное пребывание и проживание. Если у иностранцев, прошедших тестирование не на условиях анонимности, выявлена ВИЧ-инфекция, Роспотребнадзор выносит решение о нежелательности их пребывания на территории страны. Эксперты обращают внимание, что из-за страха депортации многие трудовые мигранты скрывают заболевание. Они не принимают антиретровирусную терапию и в тяжелом состоянии попадают в больницы, где им по закону не могут отказать в экстренной медицинской помощи. Авторы подсчитали, что если пациент будет получать необходимую терапию, стоимость лечения составит 83 084 руб. в год, или примерно 6924 руб. в месяц. Они отмечают, что эти затраты «при внесении определенных поправок в законодательство» могут быть оплачены за счет страны исхода.

При этом если иностранец с ВИЧ-инфекцией не получает терапию, вследствие чего у него развиваются осложнения, стационарное лечение длительностью 21 день и курс антиретровирусной терапии обойдутся в 228 572,6 руб. Этот вариант лечения обеспечивается за счет бюджета РФ.

Авторы обращают внимание на высокую распространенность ВИЧ-инфекции в России — 54,8 человека на 100 тыс. населения. В странах, из которых трудовые мигранты приезжают чаще всего, показатель гораздо ниже: 14,2 — в Таджикистане, 13,2 — в Киргизии, 7,2 — в Азербайджане. Кроме того, они ссылаются на недавнее исследование Минфина России о влиянии ВИЧ на экономическое и демографическое развитие РФ. Согласно его данным, ежегодные потери общества от неконтролируемого распространения ВИЧ-инфекции составляют примерно 200 млрд руб. Исследователи отмечают, что «одной из характерных черт современного этапа распространения ВИЧ-инфекции в РФ является расширение масштабов скрытой эпидемии среди трудовых мигрантов, вынужденных держать свой ВИЧ-статус в тайне».

По данным ЦНИИ эпидемиологии Роспотребнадзора, в России с 1985 года, когда был обнаружен первый случай инфекции, до конца 2019 года было выявлено 37 389 ВИЧ-положительных иностранцев (речь о тех, кто прошел обследование официально). За это же время число ВИЧ-инфицированных россиян достигло 1 420 975 человек. Глава федерального центра по борьбе со СПИДом Вадим Покровский сказал “Ъ”, что, учитывая соотношение, влияние иностранцев на эпидемиологическую ситуацию «не такое уж большое». По его словам, в конце 1980-х, когда инфекция действительно обнаруживалась в основном у приезжающих из-за рубежа, в их обследовании и высылке на родину «был какой-то смысл». Уже через несколько лет число россиян—носителей инфекции значительно превышало число иностранцев, продолжает он, однако практика депортации поддерживалась «ура-патриотами», которые считали, что таким образом «спасают Россию от ВИЧ-инфекции». Сейчас, по мнению господина Покровского, основная проблема — экономическая, так как лечение пожизненное, дорогостоящее и непонятно, за чей счет мигранты будут его получать.

“Для того чтобы реализовать те предложения, о которых идет речь в исследовании, нужно внести соответствующие изменения в законодательство. Несомненно, это встретит волну споров»,— говорит господин Покровский.

Отметим, в 2016 году Европейский суд по правам человека (ЕСПЧ) признал Россию виновной в нарушении прав ВИЧ-положительных иностранцев, которым при наличии этого заболевания был запрещен въезд и пребывание в РФ. За год до этого, после соответствующего решения Конституционного суда, вышло постановление, что если у мигранта супруг, дети или родители — граждане РФ, его нельзя выдворять. Однако ЕСПЧ настаивал на полном отказе от дискриминации ВИЧ-инфицированных лиц. В решении говорилось, что Россия является единственной страной СЕ и одной из 16 стран в мире, которая депортирует иностранцев только на основании их ВИЧ-статуса.

Координатор благотворительных программ комитета «Гражданское содействие» (внесен Минюстом в список иноагентов) Варвара Третяк утверждает, что найти мигранта с ВИЧ практически невозможно: люди «просто уходят в тень», живут и работают нелегально. Комитету чаще приходится взаимодействовать с беженцами с ВИЧ-положительным статусом. Госпожа Третяк рассказывает историю гражданина Узбекистана, который, покинув страну из страха уголовного преследования за гомосексуализм, просил убежища в РФ. Он попытался получить патент на работу и для этого прошел медобследование. Однако после выявления ВИЧ «дорога в легальном поле», по словам Варвары Третяк, для него была закрыта. В результате он переехал в третью страну.

Один из авторов доклада, научный сотрудник Института социальной политики ВШЭ Даниил Кашницкий сообщил “Ъ”, что результаты исследования будут направлены в Роспотребнадзор, Минздрав и МВД. В Роспотребнадзоре “Ъ” заявили, что в последние годы законодательство по вопросам миграционной политики «оптимизируется». В ведомстве также заявили, что не принимали «решения о нежелательности пребывания (проживания) в отношении иностранных граждан или лиц без гражданства с 15 марта до 15 декабря 2020 года». В Минздраве “Ъ” сообщили, что в ведомстве «вызывают большие вопросы как методология, так и выводы исследования».

Andorra: People refused entry to the country for a variety of health reasons, including HIV

A doctor’s complaint against the Andorran government for the ‘grave violation of human rights’ of immigration medical services

Translated from Spanish via Deepl.com; Scroll down for the original article in Spanish.

Ricardo Villanueva, a doctor who worked for three years in a hospital in Andorra, has filed a complaint against the government of the Principality. The doctor claims that people have been refused entry to the country for various health reasons: HIV, hepatitis, diabetes, myopia, obesity, anxiety and deafness.

‘The objective is purely economic, as vulgar as that’, he denounces, adding: “an HIV-positive patient is going to be an economic burden for them in the future, and for an obese patient the capacity to develop illnesses is going to be much greater, which is going to have repercussions on their coffers”.

In this sense, the doctor highlights a fact: ‘The average life expectancy in Andorra is 90 or 91 years, more than anywhere else in Europe, this is due to the fact that “sick, no thanks”’. ‘When they have an illness or whatever, the Andorran service automatically takes away their residence permit, and if they don’t have a residence permit, they have to go to their country of origin,’ he laments.

Moreover, Villanueva assures that ‘this situation has not changed nowadays’, according to what he has heard ‘from doctors who continue to work in Andorra’, to which he adds that ‘what has happened is that there is better surveillance in the flow of data referring to these problems’.


La denuncia de un médico al Gobierno de Andorra por la “grave violación de los derechos humanos” de los servicios médicos de inmigración

Ricardo Villanueva, un médico que trabajó tres años en un hospital de Andorra, abandera una denuncia contra el Gobierno del Principado. El doctor asegura que han denegado la entrada al país por diferentes cuestiones de salud: VIH, hepatitis, diabetes, miopía, obesidad, ansiedad o sordera.

“El objetivo es meramente económico, así de vulgar”, denuncia, tras lo que añade: “un paciente seropositivo va a ser para ellos el día de mañana una carga económica y para un paciente obeso la capacidad de desarrollar enfermedades va a ser mucho más amplia, con lo que eso va a repercutir en sus arcas”.

En este sentido, el doctor destaca un dato: “El promedio de vida en Andorra son 90 o 91 años, más que en ninguna parte de Europa, esto es debido a que ‘enfermos, no gracias'”. “Cuando tienen una enfermedad o lo que sea, automáticamente el servicio de Andorra les quita el permiso de residencia, y si no tienen permiso de residencia, tienen que irse a sus países de orígenes”, lamenta.

Además, Villanueva asegura que “esta situación no ha cambiado en la actualidad”, según lo que le llega “por parte de médicos que siguen trabajando en Andorra”, a lo que apostilla que “lo que ha ocurrido es que hay una mejor vigilancia en los flujos de datos que hacen referencia a estos problemas”.

Russia: The deportation of people living with HIV is outdated, bad for public health and economically ineffective

“He sees his children only by video link.” How the law to deport migrants with HIV turns foreigners into illegal immigrants and destroys families

Automatic Google translation, for original article in Russian, please scroll down.

Author: Ekaterina Ivaschenko

Russia is one of 19 countries in the world where HIV is the basis for deportation. In practice, when migrants find out about their positive status, they do not leave, but turn into illegal immigrants and are afraid to seek treatment. Those who report themselves can be expelled even if they have a family in Russia – although this has been banned since 2015.

We will tell you why the law on deportation harms not only the migrants themselves, but also the economy of Russia, as well as the health of all its inhabitants, regardless of citizenship.

Sardor is 24 years old. He came to work in Russia from Kyrgyzstan nine years ago, at the age of 15. His mother was the first to leave for Russia – after her husband and her three children were abandoned. Sardor did not get along with his father and stepmother, so after the eighth grade he came to his mother. The teenager was sent by bus through Kazakhstan, leaving the driver with a power of attorney.

“I dreamed of getting a good education, becoming a doctor, but in the end, when I came to Russia, I did not speak a word of Russian,” Sardor says. Until the age of 16, he worked at a brick factory in a village near Novosibirsk, then returned to his homeland, received a passport and returned to Russia.

Three years ago, Sardor moved to Moscow, where he worked in various fields, from a janitor to a cook. He found out about his HIV status last year when he got seriously ill in winter and was tested. A specialised NGO (nongovernmental organisation) helps him to receive antiretroviral therapy. The young man does not want to return to his homeland: he says that there is discrimination against HIV-infected people. He also does not tell his relatives about his status.

How deportation law turns migrants into illegal immigrants

For years, specialised NGOs and human rights activists have been fighting for the right of people like Sardor to live in Russia without the threat of deportation. But Russia remains one of 19 countries in the world from which HIV-positive foreigners are expelled . These restrictions are spelled out in the law “On Preventing the Spread of Disease Caused by the Human Immunodeficiency Virus in the Russian Federation”, adopted back in 1995 .

If a person takes an HIV test officially: for example, to obtain a patent or apply for citizenship, his data goes to Rospotrebnadzor, which makes a decision on the undesirability of a foreigner’s stay in Russia and sends the document to the Ministry of Internal Affairs. Since in such cases people have to leave the country on their own, they often remain in Russia illegally. Those who know about this norm in advance take the test anonymously. In case of a positive result, they can cross the border to receive treatment at home, but do not draw up documents.

The coordinator for academic relations of the Regional Expert Group on the Health of Migrants Daniil Kashnitsky explains that in practice the rule on the deportation of HIV-infected foreigners does not work, because deportation itself is expensive even for Russia, the richest state in the region: “After Rospotrebnadzor decides on Deportation of a person is sent to the Ministry of Internal Affairs for execution, but it is impossible to find a person, because he often does not live at the place of registration, plus the deportation itself costs money, to which is added the cost of keeping people in TsVSIGs . And people with HIV-positive status, realising that, for example, they cannot get a patent for work and it is better not to leave the country, because they will never be able to return, they go into illegality. ”

The hidden HIV epidemic: statistics and causes

In 2021, the Financial Research Institute of the Ministry of Finance of Russia published a socio-economic study of state policy on HIV , which also mentions migrants.

The document says that “one of the components of the problem of high levels of HIV incidence among the population of Russia may be the growing scale of the latent epidemic, formed mostly by migrants from Moldova, Tajikistan, Uzbekistan, Ukraine. status”.

“As of 2018, foreign citizens accounted for only 2.1% of new cases of HIV infection, but the Ministry of Internal Affairs data on the number of illegal migrants does not allow us to say that official statistics reflect the true picture of the incidence and prevalence of HIV infection among foreign citizens, “the study says.

The authors of the document say directly that the underlying epidemic is based on the current legal status of HIV-infected migrants: “Under the conditions of Russian legislation, which imposes restrictions on entry and stay on the territory of the country for HIV-infected people, foreign citizens are forced to hide their status, which is a significant threat for the development of a latent epidemic “.

“I read this report, and I was confused by this quote,” says Daniil Kashnitsky, explaining that he means the authors of the report assertion that “one of the components of the problem of high levels of HIV incidence among the Russian population may be the growing scale of a hidden epidemic formed mostly by migrants from Moldova, Tajikistan, Uzbekistan, Ukraine “.

“It is wrong to say that migrants are contributing to the epidemic. If migration is well organised, then this is an extremely positive process from all sides. Not migration is a risk factor, but the circumstances in which migrants find themselves and the laws that are in force in the receiving country, in our case, in Russia, “emphasises Kashnitsky.

The available figures for migrants are really low, especially in comparison with the general data for Russia, where 1.2% of the adult population is infected with HIV . According to Rospotrebnadzor, 2.5 million foreigners were tested for HIV in Russia in 2017. Among the citizens of the neighbouring countries, 32,885 HIV cases were detected, 70% of the detected infected were from Ukraine, Uzbekistan and Tajikistan. “In 2014-2015, 4000-4500 new cases of HIV infection were detected among foreign citizens, mainly from Ukraine, who traveled to Russia en masse. Now about 3500 cases are detected a year. But there are more migrants with HIV, because some of them are tested anonymously, and some avoid testing, knowing that they are infected, “the representative of Rospotrebnadzor said at the time.

An interesting situation is with Turkmenistan, which officially reported two cases of HIV infection in the country. At the same time, on the territory of Russia in 2017, Rospotrebnadzor recorded 136 cases of HIV infection among citizens of this country, although the flow of migrants from there is small.

A separate situation for the citizens of Kyrgyzstan. The fact is that the country is a member of the EAEU, therefore, unlike Uzbeks and Tajiks, its citizens do not receive a patent for which they need to take an HIV test.

Helping people with HIV is cheaper than treating AIDS. Who does it

The fact that foreigners with HIV remain in Russia is evidenced, for example, by the data of the Patient Control movement : “In 2020, thanks to the donations provided and the joint efforts of HIV activists, 449 people from 19 countries received ARVs on the territory of Russia, of them: Tajikistan – 88, Kyrgyzstan – 67, Uzbekistan – 33, Kazakhstan – 20 and Turkmenistan – 2 “.

Kirill Barskiy, program coordinator of the Steps Foundation, one of the few Russian nongovernmental organisations that helps HIV-positive migrants, says that foreigners have been turning to them for help since the foundation was founded in 2004. In 2020 alone, more than 2,000 people. People who contacted the fund wanted to anonymously take a test for HIV, hepatitis and even coronavirus, get advice on their health, and also sought help in finding therapy.

36-year-old Kemal is one of those who “Steps” literally helped to get back on their feet. Kemal ended up in Russia 10 years ago. I came from Turkmenistan to earn money under the pretext of studying – otherwise it was impossible to get here because of the visa regime between the countries. The young man really studied at the university, and at night he worked as a loader, cook, waiter to pay for his studies.

Kemal learned about his HIV status in 2014, when he updated his medical book and passed an HIV test. “I didn’t immediately understand what it was: they didn’t give me a medical book, well, okay. 2,000 rubles in cash, “says Kemal.

The man got worse every month. He dropped out of school but continued to work. At some point, it became very bad, and he went to the hospital. “As I later found out, HIV had already spilled over into AIDS and I had Kaposi’s sarcoma,” says Kemal. Thanks to the work of the foundation’s staff, he was able to recover and start taking antiretroviral drugs.

“Now I work in those jobs where a medical book and a contract are not needed. Every day I take therapy. It costs 10 thousand rubles a month – a significant amount for an illegal migrant. But I have HIV, with which I can live in Moscow, but in Turkmenistan is not, because they deny the presence of HIV-infected, “- explains the man.

The abolition of the deportation rule is beneficial even economically, says Daniil Kashnitsky: it will enable migrants to take therapy on time, and HIV will not turn into AIDS, which develops serious and costly diseases.

“When life is threatened, a person is subject to emergency treatment, which is provided to everyone in Russia free of charge. According to our data, inpatient treatment of a person with HIV-associated diseases will cost Russia three times more than if he buys the therapy himself or receives it for AIDS. -the center of his state, – explains the expert. – The principle itself is important here: a person takes therapy – and in three months his viral load drops to zero. He will not transmit HIV through unprotected sex, he can give birth to healthy children, work and pay taxes. not being treated, he develops one of the concomitant diseases – and the cost of treatment, already from the Russian budget, will be at least three times more expensive than a year’s course of therapy. ”

Kirill Barskiy, the coordinator of the Steps Foundation, emphasises that the authorities’ attempt to control does not work with any disease: “People will still hide. Do not forget that HIV infection has a window period of six months when the virus is not detected. that the authorities have to wait six months for a second test, at the same time prohibiting the migrant from any contacts. But this is impossible. Therefore, mechanisms are needed to control the process of treatment of foreigners. In fact, no one knows the real statistics of HIV-positive migrants in Russia. Accordingly, we do not know how many are taking treatment and controlling the disease, and how many are not. If a person is not expelled, he will not hide, and this will make it possible to build a system for monitoring his disease and preventing its spread. ”

Deportation of relatives with HIV: banned since 2015, but ongoing

NGOs and the community have long been fighting for the complete abolition of the deportation rule, says Daniil Kashnitsky. The first letter with such an initiative was sent to the government in May 2018, then they turned to relevant government agencies.

“We have received replies to all our letters, but these are polite enumerations of the norms of Russian legislation concerning foreigners with HIV. The letters invariably mention the norm that foreigners with HIV, whose relatives are Russian citizens, may remain in Russia. In practice, only a few have managed to achieve this. , therefore, the norm must be abolished entirely, because it is bad for migrants, for Russia and its budget. There is not a single plus in maintaining this norm, “Kashnitsky is sure.

The ruling of the Constitutional Court that if an HIV-positive foreigner has a spouse, children or parents who are Russian citizens, then he cannot be expelled from the country, was adopted in 2015. However, in reality, lawyers have been fighting for years for the rights of HIV-infected foreigners to live with their families in Russia.

Alisher, originally from Andijan, came to Russia in 2013 after his parents. His father already has Russian citizenship. At first, the man lived with his parents in one of the regions, and then moved to Moscow, where he met a Russian woman.

In 2015, they had a daughter with Alisher, and in 2016, a son. The marriage was not registered, but Alisher is listed as a father in the birth certificates of the children. In 2017, the man decided to apply for a temporary residence permit in Russia (RVP) for marriage. To do this, it was required to pass an HIV test, which turned out to be positive.

The man did not know that the entrance to the country was closed for HIV-positive migrants, and after another flight to his homeland, he was not allowed to enter Russia. It was in the spring of 2018. The wife appealed against the decision of Rospotrebnadzor in the district court of Khabarovsk, at the place of permanent registration of Alisher. But in December 2019, the judge left the decision of the migration authorities unchanged.

“I have been in charge of this case for several years,” says Olga Belousova, a lawyer who assists migrants in similar situations. “Now his wife has hired a lawyer who represents Alisher’s interests in Russian courts. …

Such cases last at least a year, notes Olga Belousova. And there are times when the deportation rule leads to sad consequences. The lawyer tells how she handled the case of an HIV-infected girl from Ukraine, who in Russia received a residence permit on her father’s side. At the stage of taking the tests, the girl was diagnosed with HIV, issued a document obliging her to leave Russia, and put a lifelong entry ban. In 2019 she returned to Ukraine.

“The girl had the right to be in Russia. She contacted us, we completed all the documents on time, but at the trial we were told that we were late and did not cancel the decision of Rospotrebnadzor. Against the background of this news, her father had a heart attack, and in August He died in 2019. My applicant was unable to bury him or visit her relatives, “Olga Belousova said.

But there are stories with happy endings. Now a lawyer is working on the case of a woman from Kazakhstan who, together with her husband and two children, applied for citizenship under the resettlement program.

“They were refused because the woman was diagnosed with HIV. She decided to divorce in order to give her husband and children an opportunity to obtain citizenship. She lived in Kazakhstan for a year and did not see her children, did not take part in their upbringing. After the husband and children received citizenship, the family decided to recover. We submitted a request to Rospotrebnadzor to find out about the woman’s position, and we received an answer that she was not on the lists of those who were denied entry to Russia, since during the pandemic the adoption of such decisions was suspended. She has Russian relatives, and the family will finally be reunited. ”

Why the deportation norm is not only outdated, but also economically unprofitable for Russia

The coordinator of the Regional Expert Group on the Health of Migrants Daniil Kashnitsky emphasises that the law on HIV adopted in 1995 was long out of date: “Then the deportation rule was prescribed, because there was no effective treatment for either foreigners or Russians, and people with HIV were quickly dying. Thanks to modern drugs, which, moreover, become cheaper every year, treating people is much more profitable than driving them out of the country. ”

Kirill Barsky from the Steps Foundation says that during negotiations with the community, the authorities operate with the fact that “foreigners are spreading the infection”, although no one can verify and prove this.

“However, the main counterargument comes not from the deputies, but from the economic departments, which believe that they will have to pay for the treatment of foreigners from the state budget,” says Barsky. for a start, it was possible to carry out surveillance of a real disease. And for this it is necessary to remove protective measures so that people are not afraid to go to hospitals. ”

“It is impossible to talk about building a system of assistance to HIV-positive foreigners at the expense of the countries of origin of migrants or the Global Fund, as long as there is a rule on deportation,” continues Kirill Barsky. “People are afraid to seek help. In principle, they do not want to talk to doctors, fearing, that at any moment they will be put in the CVDIG and sent home.Migrants are in a situation where they understand that they need help, and often they can pay for therapy themselves, but cannot tell about it, because they understand what the consequences could be. Often, even the citizens of the EAEU countries, who do not need to take an HIV test to obtain a patent, live well here and receive therapy from their homeland, but they are still afraid to get to the clinic, because they are at risk of being deported. ”

Daniil Kashnitsky, who works with representatives of AIDS centers in the countries of origin of migrants, notes that Russia should not be afraid that if the deportation rule is canceled, the costs of treating foreigners will fall on its budget: “Employees of AIDS centers in Central Asian countries are not only ready to share therapy, they They are already doing this. They send therapy to their migrants, regardless of their status of residence in Russia. For example, during the closed borders, Kyrgyzstan gave therapy to his hands for up to a year. so he knows what’s going on with his patient. ”

Kirill Barskiy confirms that the countries of origin (NGOs contacted the Ministry of Health of Uzbekistan, Kyrgyzstan, Moldova and other states) answered that they were ready to treat their citizens. Kyrgyzstan gave a detailed answer that it is ready to discuss these initiatives between the countries and, if necessary, to adopt appropriate changes to the legislation.

“In order for Russian officials to change their minds about HIV among foreigners, our experts are preparing an economic argument that the benefits of removing barriers are much higher than their existence. All civilised countries have removed barriers, and the countries of North America and Europe are even treating at their own expense foreigners, because they understand how it is economically beneficial for them. We are not opposing the state, but we are promoting a scientific justification for the need to revise the deportation rule, “Kirill Barsky concludes.


Екатерина Иващенко

“Видит своих детей только по видеосвязи”. Как закон о депортации мигрантов с ВИЧ превращает иностранцев в нелегалов и разрушает семьи

Россия – одна из 19 стран в мире, где ВИЧ – основание для депортации. На практике мигранты, узнавая о своем положительном статусе, не уезжают, а превращаются в нелегалов и боятся обращаться за лечением. Те, кто сообщает о себе, могут быть высланы, даже если в России у них есть семья, – хотя с 2015 года это запрещено.

Рассказываем, почему закон о депортации вредит не только самим мигрантам, но и экономике России, а также здоровью всех ее жителей, независимо от гражданства.

Сардору 24 года. Он приехал на заработки в Россию из Кыргызстана девять лет назад, 15-летним. Первой в Россию уехала его мать – после того как ее и троих детей бросил супруг. Сардор не ужился с отцом и мачехой, поэтому после восьмого класса приехал к матери. Подростка отправили автобусом через Казахстан, оставив водителю доверенность.

“Я мечтал получить хорошее образование, стать врачом, а в итоге, когда приехал в Россию, ни слова не говорил по-русски”, – говорит Сардор. До 16 лет он работал на кирпичном заводе в деревне под Новосибирском, потом вернулся на родину, получил паспорт и снова приехал в Россию.

Три года назад Сардор перебрался в Москву, где работал в самых разных сферах, начиная от дворника и заканчивая поваром. Про свой ВИЧ-статус он узнал в прошлом году, когда серьезно заболел зимой и сдавал анализы. Получать антиретровирусную терапию ему помогает профильная НПО (неправительственная организация). Возвращаться на родину молодой человек не хочет: говорит, что там по отношению к ВИЧ-инфицированным существует дискриминация. Родственникам о своем статусе он тоже не говорит.

Как закон о депортации превращает мигрантов в нелегалов

Профильные НПО и правозащитники годами бьются за право таких, как Сардор, жить в России без угрозы депортации. Но Россия остается одной из 19 стран мира, откуда выдворяют ВИЧ-положительных иностранцев. Эти ограничения прописаны в принятом еще в 1995 году законе “О предупреждении распространения в Российской Федерации заболевания, вызываемого вирусом иммунодефицита человека”.

Если человек сдает тест на ВИЧ официально: например, для получения патента или оформления документов на гражданство, – его данные попадают в Роспотребнадзор, который выносит решение о нежелательности пребывания иностранца на территории России и отправляет документ в МВД. Так как в таких случаях люди должны самостоятельно покинуть страну, они чаще всего остаются в России нелегально. Те, кто знает об этой норме заранее, сдают тест анонимно. В случае положительного результата они могут пересекать границу, чтобы получать лечение на родине, но не оформляют документы.

Координатор по академическим связям Региональной экспертной группы по здоровью мигрантов Даниил Кашницкий объясняет, что на практике норма о депортации ВИЧ-инфицированных иностранцев не работает, потому что сама депортация дорога даже для России – самого богатого государства в регионе: “После того как Роспотребнадзор принимает решение о выдворении человека, оно отправляется на выполнение в МВД. Но человека невозможно найти, потому что он чаще всего проживает не по месту регистрации, плюс сама депортация стоит денег, к которой добавляется стоимость содержания людей в ЦВСИГах. То есть из России их насильно не выдворяют. А люди с ВИЧ-положительным статусом, понимая, что им, например, не получить патент для работы и лучше не покидать страну, потому что они никогда не смогут вернуться, уходят в нелегальность”.

Скрытая эпидемия ВИЧ: статистика и причины

В 2021 году Научно-исследовательский финансовый институт Минфина России обнародовал социально-экономическое исследование государственной политики борьбы с ВИЧ, в котором в том числе упоминаются мигранты.

В документе сказано, что “одной из составляющих проблемы высоких уровней заболеваемости населения России ВИЧ-инфекцией могут являться растущие масштабы скрытой эпидемии, формируемой по большей части мигрантами из Молдовы, Таджикистана, Узбекистана, Украины. В условиях действующего законодательства представители подобной группы населения вынуждены скрывать свой статус”.

“По данным на 2018 год, на долю иностранных граждан приходилось только 2,1% новых случаев выявления ВИЧ-инфекции, но данные МВД по количеству нелегальных мигрантов не позволяют говорить о том, что официальная статистика отражает истинную картину заболеваемости и распространенности ВИЧ-инфекции среди иностранных граждан”, – говорится в исследовании.

Авторы документа прямо говорят, что в основе скрытой эпидемии лежит текущее правовое положение ВИЧ-инфицированных мигрантов: “В условиях российского законодательства, предполагающего ограничение на въезд и пребывание на территории страны для инфицированных ВИЧ, иностранные граждане вынуждены скрывать свой статус, что представляет собой существенную угрозу для развития скрытой эпидемии”.

“Я читал этот доклад, и меня смутила эта цитата”, – говорит Даниил Кашницкий, объясняя, что имеет в виду утверждение авторов доклада о том, что “одной из составляющих проблемы высоких уровней заболеваемости населения России ВИЧ-инфекцией могут являться растущие масштабы скрытой эпидемии, формируемой по большей части мигрантами из Молдовы, Таджикистана, Узбекистана, Украины”.

“Говорить, что мигранты вносят вклад в эпидемию, неправильно. Если миграция хорошо организована, то это со всех сторон исключительно положительный процесс. Не миграция фактор риска, а те обстоятельства, в которые попадают мигранты, и те законы, которые действуют в стране приема, в нашем случае в России”, – подчеркивает Кашницкий.

Имеющиеся цифры по мигрантам действительно невысокие, особенно в сравнении с общими данными по России, 1,2% взрослого населения которой инфицировано ВИЧ. По информации Роспотребнадзора, в 2017 году в России на ВИЧ было протестировано 2,5 миллиона иностранцев. Среди граждан стран ближнего зарубежья выявлено 32 885 случаев ВИЧ, 70% выявленных инфицированных – из Украины, Узбекистана и Таджикистана. “В 2014-2015 годы выявлялось по 4000-4500 новых случае ВИЧ-инфекции среди иностранных граждан, преимущественно Украины, которые массово ехали в Россию. Сейчас выявляется порядка 3500 случаев в год. Но мигрантов с ВИЧ больше, потому что часть из них сдает анализы анонимно, а часть избегает тестирования, зная, что они инфицированы”, – говорил тогда представитель Роспотребнадзора.

Интересна ситуация с Туркменистаном, который официально докладывал о двух случаях ВИЧ-инфекции на территории страны. При этом на территории России в 2017 году Роспотребнадзор зафиксировал 136 случаев ВИЧ-инфекции среди граждан этой страны, хотя поток мигрантов оттуда небольшой.

Отдельное положение у граждан Кыргызстана. Дело в том, что страна входит в ЕАЭС, поэтому, в отличие от узбекистанцев и таджикистанцев, ее граждане не получают патент, для которого нужно сдавать тест на ВИЧ.

Помогать людям с ВИЧ дешевле, чем лечить от СПИДа. Кто это делает

О том, что иностранцы с ВИЧ остаются в России, свидетельствуют, например, данные движения “Пациентский контроль”: “В 2020 году благодаря предоставленным пожертвованиям и объединенному усилию ВИЧ-активистов помощь на территории России с АРВ-препаратами получили 449 человек из 19 стран, из них: Таджикистана – 88, Кыргызстана – 67, Узбекистана – 33, Казахстана – 20 и Туркменистана – 2”.

Кирилл Барский, координатор программ фонда “Шаги” – одной из немногих российских неправительственных организаций, которые помогают ВИЧ-положительным мигрантам, – рассказывает, что иностранцы обращаются к ним за помощью с момента основания фонда в 2004 году. Только в 2020 году – более 2000 человек. Обратившиеся в фонд люди хотели анонимно сдать тест на ВИЧ, гепатит и даже коронавирус, получить консультацию на тему своего здоровья, а также искали помощи в поиске терапии.

36-летний Кемаль – один из тех, кому “Шаги” буквально помогли встать на ноги. Кемаль оказался в России 10 лет назад. Приехал из Туркменистана на заработки под предлогом учебы – по-другому сюда было не попасть из-за визового режима между странами. Молодой человек действительно учился в вузе, а по ночам работал грузчиком, поваром, официантом, чтобы оплачивать обучение.

Про свой ВИЧ-статус Кемаль узнал в 2014 году, когда обновлял медкнижку и сдал тест на ВИЧ. “Я не сразу понял, что это такое: не дали медкнижку, ну и ладно. Но без нее с работы уволили, еще и последнюю зарплату не выплатили. Я устроился работать уборщиком в ночной клуб. Работал без договора, зато каждый день получал 1500-2000 рублей наличными”, – рассказывает Кемаль.

С каждым месяцем мужчине становилось хуже. Он бросил учебу, но продолжал работать. В какой-то момент стало совсем плохо, и он обратился в больницу. “Как я потом узнал, ВИЧ уже перетекал в СПИД и у меня началась саркома Капоши”, – говорит Кемаль. Благодаря работе сотрудников фонда ему удалось вылечиться и начать принимать антиретровирусные препараты.

“Сейчас я работаю на тех работах, где не нужна медкнижка и договор. Каждый день принимаю терапию. На нее уходит 10 тысяч рублей в месяц – существенная сумма для нелегального мигранта. Но у меня ВИЧ, с которым в Москве я могу жить, а в Туркменистане нет, потому что там отрицают наличие ВИЧ-инфицированных”, – объясняет мужчина.

Отмена нормы о депортации выгодна даже экономически, считает Даниил Кашницкий: она даст возможность мигрантам вовремя принимать терапию, и ВИЧ не перейдет в СПИД, при котором развиваются тяжелые и дорогостоящие заболевания.

“При угрозе жизни человек подпадает под лечение по экстренной помощи, которая в России оказывается всем бесплатно. Согласно нашим данным, России обойдется в три раза дороже стационарное лечение человека с ВИЧ-ассоциированными заболеваниями, чем если он будет сам покупать терапию или получать ее от СПИД-центра своего государства, – объясняет эксперт. – Тут важен сам принцип: человек принимает терапию – и за три месяца его вирусная нагрузка снижается до нуля. Он не передаст ВИЧ при незащищенном сексе, может рожать здоровых детей, работать и платить налоги. Либо человек не лечится, у него развивается одно из сопутствующих заболеваний – и расходы на лечение, уже из российского бюджета, будут как минимум в три раза дороже годового курса терапии”.

Координатор фонда “Шаги” Кирилл Барский подчеркивает, что попытка контроля со стороны властей не работает ни с каким заболеванием: “Люди все равно будут прятаться. Не стоит забывать, что у ВИЧ-инфекции есть период окна в полгода, когда вирус не выявляется. Получается, что власти должны ждать полгода повторного теста, параллельно запрещая мигранту любые контакты. Но это невозможно. Поэтому нужны механизмы, которые будут контролировать процесс лечения иностранцев. На самом деле никто не знает реальную статистику ВИЧ-позитивных мигрантов в России. Соответственно, мы не знаем, сколько принимает лечение и контролирует заболевание, а сколько – нет. Если человека не будут выдворять, то он не будет прятаться, и это даст возможность выстроить систему наблюдения за его заболеванием и предотвращением ее распространения”.

Депортация родственников с ВИЧ: запрещена с 2015-го, но продолжается

НПО и сообщество давно борются за полную отмену нормы о депортации, рассказывает Даниил Кашницкий. Первое письмо с такой инициативой отправили в правительство в мае 2018 года, затем обратились и в профильные госорганы.

“На все свои письма мы получили ответы, но это вежливые перечисления норм российского законодательства, касающиеся иностранцев с ВИЧ. Неизменно в письмах упоминают норму, что в России могут остаться иностранцы с ВИЧ, родственники которых – граждане России. На практике лишь единицам удалось этого добиться, поэтому норму надо отменять целиком, потому что это плохо для мигрантов, для России и ее бюджета. В сохранении этой нормы нет ни одного плюса”, – уверен Кашницкий.

Постановление Конституционного суда о том, что если у ВИЧ-положительного иностранца есть супруг, дети или родители – граждане России, то его нельзя выдворять из страны, принято в 2015 году. Однако в реальности юристы годами борются за права ВИЧ-инфицированных иностранцев жить со своей семьей в России.

Алишер родом из Андижана, в Россию приехал в 2013 году вслед за своими родителями. У его отца уже есть гражданство России. Первое время мужчина жил с родителями в одном из регионов, а потом переехал в Москву, где познакомился с россиянкой.

В 2015 году у них с Алишером родилась дочь, а в 2016-м – сын. Брак не был зарегистрирован, но в свидетельствах о рождении детей Алишер указан как отец. В 2017 году мужчина решил подать документы на получение разрешения на временное проживание в России (РВП) по браку. Для этого требовалось сдать анализ на ВИЧ, который оказался положительным.

Мужчина не знал, что для ВИЧ-положительных мигрантов закрывают въезд в страну, и после очередного полета на родину в Россию его не впустили. Это было весной 2018 года. Супруга обжаловала решение Роспотребнадзора в районном суде Хабаровска, по месту постоянной регистрации Алишера. Но в декабре 2019 года судья оставила решение миграционных властей без изменений.

“Я курирую это дело уже несколько лет, – говорит юрист Ольга Белоусова, которая оказывает помощь мигрантам, попавшим в подобные ситуации. – Сейчас его жена наняла адвоката, который представляет интересы Алишера в российских судах. А пока он видит своих детей только по видеосвязи”.

Такие дела длятся минимум год, отмечает Ольга Белоусова. И бывают случаи, когда норма о депортации приводит к печальным последствиям. Юрист рассказывает, как вела дело ВИЧ-инфицированной девушки из Украины, которая в России получала вид на жительство по отцу. На этапе сдачи анализов у девушки обнаружили ВИЧ, выдали документ, обязывающий покинуть Россию, и поставили пожизненный запрет на въезд. В 2019 году она вернулась в Украину.

“Девушка имела право находиться в России. Она связалась с нами, все документы мы оформили в срок, но на суде нам сказали, что мы опоздали, и не отменили решение Роспотребнадзора. На фоне этих новостей у ее отца случился сердечный приступ, и в августе 2019 года он скончался. Моя заявительница не смогла ни похоронить его, ни приехать к родственникам”, – рассказала Ольга Белоусова.

Но есть истории и со счастливым концом. Сейчас юрист ведет дело женщины из Казахстана, которая вместе с мужем и двумя детьми подавала на гражданство по программе переселения.

“Им отказали, так как у женщины обнаружили ВИЧ. Она решила развестись, чтобы дать возможность мужу и детям получить гражданство. Год жила в Казахстане и не видела своих детей, не принимала участие в их воспитании. После получения гражданства мужем и детьми семья решила восстановиться. Мы подали запрос в Роспотребнадзор, чтобы узнать о положении женщины, и нам пришел ответ, что ее нет в списках тех, кому закрыт въезд в Россию, так как на время пандемии принятие таких решений было приостановлено. Теперь мы срочно готовим документы, что у нее есть родственники-россияне, и семья наконец-то воссоединится”.

Почему норма депортации не только устарела, но и экономически невыгодна России

Координатор Региональной экспертной группы по здоровью мигрантов Даниил Кашницкий подчеркивает, что принятый в 1995 году закон о ВИЧ давно устарел: “Тогда норма о депортации была прописана, потому что не было эффективного лечения ни для иностранцев, ни для россиян и люди с ВИЧ быстро умирали. Благодаря современным препаратам, которые к тому же с каждым годом становятся дешевле, лечить людей намного выгоднее, чем выгонять из страны”.

Кирилл Барский из фонда “Шаги” рассказывает, что во время переговоров с сообществом власти оперируют тем, что “иностранцы распространяют инфекцию”, хотя никто не может это проверить и доказать.

“Однако основная контраргументация идет со стороны не депутатов, а экономических ведомств, которые считают, что платить за лечение иностранцев придется из средств госбюджета, – говорит Барский. – Никто из этих ведомств не рассматривает возможность дать этим людям обнаружиться и быть в законном поле, чтобы для начала можно было осуществить надзор за реальным заболеванием. А для этого надо снять заградительные меры, чтобы люди не боялись обращаться в больницы”.

“Невозможно говорить о выстраивании оказания системы помощи ВИЧ-положительным иностранцам за счет стран исхода мигрантов или Глобального фонда, пока существует норма о депортации, – продолжает Кирилл Барский. – Люди боятся обращаться за помощью. Они в принципе не хотят разговаривать с врачами, боясь, что в любую секунду их посадят в ЦВСИГ и отправят на родину. Мигранты находятся в такой ситуации, когда понимают, что им нужна помощь, и зачастую сами могут оплачивать терапию, но не могут про это рассказать, потому что понимают, какие могут быть последствия. Нередко даже граждане стран ЕАЭС, которым не надо сдавать тест на ВИЧ для получения патента, прекрасно здесь живут и получают терапию с родины, но все равно боятся попасть в поликлинику, потому что подвержены риску быть депортированными”.

Сотрудничающий с представителями СПИД-центров стран исхода мигрантов Даниил Кашницкий отмечает, что Россия не должна бояться, что в случае отмены нормы о депортации расходы на лечение иностранцев лягут на ее бюджет: “Сотрудники СПИД-центров стран Центральной Азии не только готовы делиться терапией, они уже это делают. Они своим мигрантам, независимо от их статуса проживания в России, отправляют терапию через родственников. Например, во время закрытых границ Кыргызстан выдавал терапию на руки до года. Единственно, раз полгода человек должен отправлять лечащему врачу результаты своих тестов на ВИЧ, чтобы он знал, что происходит с его пациентом”.

Кирилл Барский подтверждает, что страны исхода (НКО обращались в Минздрав Узбекистана, Кыргызстана, Молдовы и других государств) ответили, что готовы лечить своих граждан. Кыргызстан дал развернутый ответ, что готов обсуждать эти инициативы между странами и, если потребуется, принять соответствующие изменения в законодательство.

“Чтобы российские чиновники могли изменить мнение о ВИЧ среди иностранцев, наши эксперты готовят экономическую аргументацию того, что выгода от снятия заградительных мер гораздо выше, чем их существование. Все цивилизованные страны сняли заградительные меры, а страны Северной Америки и Европы даже за свой счет лечат иностранцев, потому что понимают, как это экономически выгодно им. Мы не противостоим государству, а продвигаем научное обоснование необходимости пересмотра нормы о депортации”, – заключает Кирилл Барский.

Nepal: How critical HIV medicine reached a traveler stranded in Nepal during the pandemic

Stranded in Nepal without HIV medicine

Wang Tang (not his real name) had never been to Nepal before, but at the end of March 2020 it was one of the few countries that had not closed its borders with China. Since he was desperate to get away from Beijing after having had to stay at home for months after the coronavirus outbreak spread throughout China, he bought a ticket.

But days after he arrived, while he was staying in Pokhara, the fourth stop on his trip, the local government announced that the city would be shut down. He heard that the lockdown would not last longer than a month.

As someone who is living with HIV, he had brought along enough HIV treatment to last for a month. However, he soon learned that the re-opening of the city was to be postponed, which meant that he was at risk of running out of the medicine he needed to take regularly in order to suppress his HIV viral load and stay healthy.

Mr Wang swallowed hard while counting the remaining tablets. He had no idea how to get more.

As the lockdown dragged on, it seemed that no end was in sight. Mr Wang started to take his medicine every other day so that his supply would last a little bit longer.

He contacted his friends back at home, hoping that they could send medicine to Nepal, but they couldn’t. The country was under lockdown—nothing could be imported.

Then, Mr Wang contacted his friend Mu-Mu, the head of Beijing Red Pomegranate, a nongovernmental organization providing volunteer services for people living with HIV. It was with Mu-Mu’s help that Mr Wang learned how to obtain HIV treatment after he was diagnosed as living with HIV. Having known each other for many years, Mu-Mu had the trust of his friend. Mu-Mu contacted the UNAIDS Country Office for China to see if it was possible to deliver medicines to Mr Wang. A UNAIDS staff member quickly got in touch with the UNAIDS Country Office for Nepal.

Everything happened so quickly that Mr Wang was shocked when he received a message from Priti Acharya, who works for AHF Nepal and had been contacted by the UNAIDS Nepal office, saying that she would bring the medicine to him.

The next day, Ms Acharya rode her motorbike for 15 km on a dusty road before reaching the place where she would meet Mr Wang. When he came down from the mountains to meet her, Ms Acharya, drenched in sweat, was waiting under the midday sun.

“I was so happy and thankful for her hard work. She gave me a sunny Nepalese smile in return, as well as detailed instructions on the medicine’s dosage,” said Mr Wang.

They took a photograph together, then Mr Wang watched Ms Acharya as she left on her motorbike. Her image, disappearing in the distance, is carved into his memory. To attend the five-minute meeting, Ms Acharya had to ride a round trip of more than 30 km.

“For half a month or so, I had been suffering from pain and anxiety almost every day due to the lack of medication and the loneliness of being in a foreign country on my own. I could not believe that I got the HIV medicine in such a short time,” said Mr Wang. After the trip, he wrote to thank Ms Acharya, explaining how important the medicine he now had in his hand was: “it’s life-saving.”

At the end of his stay in Nepal, Mr Wang wanted to do something for UNAIDS. As he is an experienced photographer, he volunteered to carry out a photo shoot for UNAIDS’ Nepal office.

The subject he chose was former soccer player Gopal Shrestha, the face of an HIV charity in Nepal and the first person living with HIV to reach the summit of Mount Everest. After his HIV diagnosis in 1994, Mr Shrestha launched the Step-Up Campaign and spent many years climbing mountains worldwide, hoping to give strength and hope to people living with HIV.

In 2019, Mr Shrestha reached the peak of the world’s highest mountain, Mount Everest, recording a historic breakthrough for people living with HIV. “If 28 000 people have already climbed Mount Everest, why can’t I?” he said. “By climbing the highest mountain in the world, I want to prove that we are no different from anyone else and that we can all make a difference.”

“The moment I saw him, I could tell he was a sophisticated man,” said Mr Wang. Without instructions, Mr Shrestha posed naturally in front of the camera. He displayed confidence and charm. His eyes, content and clear, reflected nature’s beauty. “The eyes surely are the window to the soul,” Mr Wang said.

Mr Wang is looking forward to his next trip to Nepal. After the pandemic, Pokhara’s lakeside will be flooded with tourists, and he looks forward to seeing the mountain town bustling with people like it used to.

Jordan: Health professionals mandated to report individual’s HIV status to the government

Foreigners Living with HIV in Jordan Face an Impossible Choice

Government Mandates Reporting HIV Status, Deports People Living with HIV

In Jordan, medical professionals and health facilities are mandated to report an individual’s HIV status to the government. Foreign nationals found to be HIV-positive are summarily deported regardless of the consequences to their health and safety and banned for life from returning.

Earlier this year, an Iraqi gay man living with HIV fled to Jordan to escape persecution he faced at home for being gay, yet he could not access HIV treatment without being immediately deported. When his health rapidly deteriorated, he could not seek medical attention for fear of being deported. Whatever decision he made would threaten his life.

Jordan also obliges nationals to undergo HIV testing when seeking employment in the public sector and for non-nationals obtaining work permits, and denies them jobs if they are HIV-positive. It also requires testing for non-nationals renewing residency permits. For LGBT people living with HIV, the stigma and discrimination by medical professionals and employers often bars them from accessing basic rights, without any legal recourse.

Abdallah Hanatleh, executive director of “Sawaed,” an Amman-based organization that facilitates access to HIV treatment, told Human Rights Watch that his organization documents dozens of deportations based on HIV status annually.

Jordan is not alone in this abusive practice. Gulf states including Saudi Arabia and the United Arab Emirates also deport people found to be HIV-positive without any provision for continuity of care. Worse yet, in Jordan, as in Saudi Arabia and the UAE, HIV-positive foreign nationals in the criminal justice system are denied adequate access to treatment in prison. “They are placed in solitary confinement, further isolating and stigmatizing them,” Hanatleh said.

International law prohibits deportations based solely on HIV status. Jordan should explicitly ban discrimination based on HIV status and stop deporting HIV-positive individuals under the principle of non-refoulement. This principle applies to asylum seekers and refugees, and for people with HIV, it means that governments are prohibited from returning them — depending on how advanced the disease — to places where they do not have adequate access to medical care and social support, or where they risk being subjected to persecution or degrading treatment on account of their HIV status.

Jordan should not mandate reporting of HIV status and employers should not be requiring HIV testing in the first place. People living with HIV should never be forced to forego lifesaving treatment in order to avoid deportation to danger.

Jordan: Jordan’s HIV deportation policy threatens lives

Foreigners Living with HIV in Jordan Face an Impossible Choice

Government Mandates Reporting HIV Status, Deports People Living with HIV.

In Jordan, medical professionals and health facilities are mandated to report an individual’s HIV status to the government. Foreign nationals found to be HIV-positive are summarily deported regardless of the consequences to their health and safety and banned for life from returning.

Earlier this year, an Iraqi gay man living with HIV fled to Jordan to escape persecution he faced at home for being gay, yet he could not access HIV treatment without being immediately deported. When his health rapidly deteriorated, he could not seek medical attention for fear of being deported. Whatever decision he made would threaten his life.

Jordan also obliges nationals to undergo HIV testing when seeking employment in the public sector and for non-nationals obtaining work permits, and denies them jobs if they are HIV-positive. It also requires testing for non-nationals renewing residency permits. For LGBT people living with HIV, the stigma and discrimination by medical professionals and employers often bars them from accessing basic rights, without any legal recourse.

Abdallah Hanatleh, executive director of “Sawaed,” an Amman-based organization that facilitates access to HIV treatment, told Human Rights Watch that his organization documents dozens of deportations based on HIV status annually.

Jordan is not alone in this abusive practice. Gulf states including Saudi Arabia and the United Arab Emirates also deport people found to be HIV-positive without any provision for continuity of care. Worse yet, in Jordan, as in Saudi Arabia and the UAE, HIV-positive foreign nationals in the criminal justice system are denied adequate access to treatment in prison. “They are placed in solitary confinement, further isolating and stigmatizing them,” Hanatleh said.

International law prohibits deportations based solely on HIV status. Jordan should explicitly ban discrimination based on HIV status and stop deporting HIV-positive individuals under the principle of non-refoulement. This principle applies to asylum seekers and refugees, and for people with HIV, it means that governments are prohibited from returning them — depending on how advanced the disease — to places where they do not have adequate access to medical care and social support, or where they risk being subjected to persecution or degrading treatment on account of their HIV status.

Jordan should not mandate reporting of HIV status and employers should not be requiring HIV testing in the first place. People living with HIV should never be forced to forego lifesaving treatment in order to avoid deportation to danger.

Northern Cyprus: Challenging discriminatory immigration laws against HIV-Positive foreign national

Immigration Law Permits Deportation Of Foreign Nationals In Northern Cyprus On The Basis Of HIV Status

The CAP 105 Aliens and Immigration Law prohibits HIV positive foreign nationals from staying in Northern Cyprus. Human rights organisations in the country have called for the policy to be set aside, arguing that it is discriminatory and that it undermines human rights. It also appears that the provisions of the Aliens and Immigration Law are not in line with the country’s own constitution, which provides for equality before the law and prohibits the enactment of any policy or legislation which is discriminatory.

PROTECTING PUBLIC HEALTH VS. UNDERMINING RIGHTS

Article 6(1)(c) of the Aliens Law and Immigration Law states that any foreign national suffering from a contagious or infectious disease that is a danger to public health (including HIV, Hepatitis B and C, and tuberculosis) may be deported. The supposed rationale behind this article is that allowing foreign nationals who are infected with a contagious disease to enter or stay in the country will pose a risk to public health, which the current health system may not be able to contain. However, this is not the case with HIV, as evidenced by a report on the analysis of the HIV epidemic in Cyprus which was presented by researchers from Near East University Experimental Health Sciences Research Centre to the Minister of Tourism and Environment, Fikri Ataoğlu, in 2018. The report stated that there was no likelihood of an HIV epidemic in Cyprus for the next 50 years.

report by the Joint United Nations Programme on HIV/AIDS (UNAIDS) on HIV-related travel restrictions clearly shows that restrictions on entry, stay, and residence in a country based on HIV status are discriminatory and cannot be justified on public health grounds. It also indicates that such restrictions do not protect public health, but in fact impede efforts to protect public health by creating barriers to access services for people living with HIV and people at higher risk of HIV.

Voices of International Students, a local NGO in Northern Cyprus that advocates for the rights of international students, released a report titled If laws kill! in which they stated that by criminalising foreign nationals living with HIV, the Northern Cyprus government is, in fact, creating an environment for the transmission of the disease and other STDs. This is because if people fear being deported on the basis of a positive test, they will tend to not go for tests.

TREATMENT OF SIMILAR POLICIES UNDER INTERNATIONAL LAW

Although Northern Cyprus is a de facto state, the European Court of Human Rights (ECHR) stated in Loizidou v. Turkey that the European Convention on Human Rights (Convention) applies to Northern Cyprus by virtue of Turkey’s control over that part of the island. Therefore, residents of Northern Cyprus can seek recourse from the ECHR after exhausting local remedies.

In Kiyutin v. Russia, the ECHR held that member states could not refuse foreign nationals residence permits on the basis of HIV status, as this was a violation of article 14 of the Convention which prohibited discrimination. Similarly, in the case of D v. the United Kingdom the court held that the removal of a patient dying of AIDS to his country of origin, where he had no access to adequate medical treatment, accommodation, family, financial, or moral support, constituted a violation of article 3 on the prohibition of torture or inhuman or degrading treatment. The Convention explicitly affirms that foreign nationals should enjoy the same rights as citizens, particularly the right of due process, political freedoms, and equal legal protection.

Under international law, it is acknowledged that states may impose immigration and visa restrictions as a valid exercise of their national sovereignty. However, they are also bound to uphold the human rights of non-discrimination and equality before the law. If states limit these rights, they must show that this is necessary to achieve a legitimate goal, and that the means used actually achieve the goal in the least restrictive manner possible. The Northern Cyprus government has not shown that they are limiting the rights of foreign nationals to achieve a legitimate goal. As stated above, such restrictions do not protect public health, but in fact impede efforts to protect public health by creating barriers to access services for people living with HIV and people at higher risk of HIV. In addition, the blanket exclusion of all people living with HIV is arguably not the most rational or least restrictive means possible of achieving the goal of protecting public health.

In 2008, the Seoul High Court in the Heo case prevented the deportation of a Chinese citizen of Korean descent from South Korea on the basis of his HIV status, stating that the protection of public health should be balanced against the right to medical treatment and the right to privacy. In 2010, the United States government removed HIV from the definition of “communicable disease of public health significance,” and from the scope of assessment for aliens entering the country. This act ensured that HIV status alone cannot be a reason for excluding, removing, or deporting a person from the United States. In March 2015, the Constitutional Court of Russia held that HIV status was not a ground for deportation. According to the ruling, being HIV-positive did not represent an unconditional basis for deportation from the country for foreign nationals who had families in Russia.

Sadly, the Alien and Immigration Law appears to be out of step with international law and norms. The trauma experienced by foreign nationals in this regard resonate in the words of a female Nigerian student who was deported from Northern Cyprus on the basis of her HIV status:

Recounting what happened from the day I was called to the police station, to having to sleep there for a night and then sent off to the airport with my luggage, being told to drag my luggage with handcuffs on my hands, wasn’t such a good image for people looking and I actually did not feel good about myself, I thought I was such a bad person but apparently that’s the law and I hope doing this, things will actually change for the better.

Challenging the constitutionality of the Aliens and Immigration Law in the local courts could prove difficult, unless an applicant with legal standing – such as a foreign national who is on the verge of deportation and who has the capacity to litigate – raises such challenges.

Egypt: UNAIDS helps non-nationals in Egypt to get supplies of antiretroviral therapy

UNAIDS supporting people stranded in Egypt to access HIV treatment

Hundreds of thousands of people around the world have been stranded abroad due to the bans on flights and border closures imposed to stop COVID-19. As elsewhere, thousands of non-nationals have been stranded in Egypt indefinitely.

Travel restrictions have had many repercussions on the daily lives of non-nationals, putting significant economic pressure on them and potentially putting their well-being at risk.

The UNAIDS Country Office for Egypt has been working on COVID-19 from the start of the pandemic in the country, establishing a direct line of communication with the National AIDS Program and working with it to ensure the continuation of HIV treatment by everyone on it and to help non-nationals in Egypt to get supplies of antiretroviral therapy.

Sophia Bianchi (not her real name) is an Italian tourist stranded in Sharm El Sheikh. “I ordered my antiretroviral treatment in late April from Italy via a courier service. Unfortunately, the shipment was stuck at the airport customs in Cairo for weeks. I contacted UNAIDS and they have been very helpful, following up daily with the Egyptian Ministry of Health and Population to get approval for releasing the shipment and checking on me and my health. They kept pushing through the Eid holidays and it all got resolved in two weeks. It was a stressful time but now I am relieved,” she said.

Antiretroviral therapy is available in Egypt free of charge to all nationals and registered refugees. However, as there is no community-based dispensing, nor private market purchase of antiretroviral medicines, gaps remain in ensuring that non-nationals can access treatment. For this reason, UNAIDS’ work during the COVID-19 pandemic has been essential in bridging the gaps.

There are strict rules on the dispensing of antiretroviral therapy in Egypt—only close family members are able to collect it from the dispensing centre. For Fatima Ahmed (not her real name), a refugee from Yemen who because of chronic illnesses that put her at higher risk from COVID-19 cannot leave her house, this was a significant barrier to accessing her HIV treatment. UNAIDS got in contact with the Egyptian Ministry of Health and Population to get an exceptional approval to dispense her medicine through a nongovernmental organization.

“I have not left the house for more than three months. My family has not been able to support me financially, so I was left without revenue. Thanks to the support of the National AIDS Program and MENA Rosa, a nongovernmental organization, peer supporters have delivered three months of antiretroviral treatment to my doorstep,” said Ms Ahmed.

However, much still remains to be done in reaching out to the most in need in Egypt. UNAIDS in Egypt has been advocating for the right to health and universal health coverage for everyone and is working in partnership with the Egyptian Ministry of Health and Population to ensure treatment for all nationals and non-nationals in the country.

“We believe in the absolute right of everyone to have access to their basic right to health. Ensuring access to antiretroviral therapy during these exceptional times is therefore our upmost priority. We are working relentlessly with our governmental and nongovernmental partners to build long-term policies to ensure treatment and care services for people living with HIV during times of emergency,” said Walid Kamal, the UNAIDS Country Director for Egypt.

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