Canada: New guide offers practical advice to HIV nurses and clarifies professional obligations regarding HIV and the criminal law

A new guide which aims to address some of the realities and complexities faced by nurses and others who provide care to people living with HIV in Canada, is now available.

Covering everything from record keeping, confidentiality, viral load and safer sex to search warrants, subpoenas and testifying in court, it offers practical advice to HIV nurses and helps clarify their professional obligations regarding isues around HIV (non)disclosure and the criminal law.

Listen to lead author Marilou Gagnon, who gave an interview to CBC radio about the reasons for the guidance.

Developed by the Canadian Association of Nurses in AIDS Care (CANAC) in partnership with CATIE (Canadian AIDS Treatment Information Exchange), it was written in February 2013, four months after the release of the Supreme Court of Canada decisions in the cases of R. v. Mabior and R. v. D.C.

The guide is an extremely important resource at a very difficult and confusing time in Canada – not only for people living with HIV, but also those who work with, or advocate for them.  Although the guide covers legal and scientific complexities around (non)disclosure that are specific to the Canadian context, it may also be helpful for HIV service providers in other jurisdictions. At the very least, this is a ‘best practice’ model for others to emulate.

This excerpt from the introduction provides a good overview of the content and tone of the guide, which can be ordered and/or downloaded from the CATIE website.

In the current Canadian legal context, it is important for nurses to maintain trust and therapeutic relationships with clients, to preserve a safe space for clients to talk about HIV disclosure issues, and to recognize that real-life experiences of HIV disclosure are far more complex than the idealized representation of disclosure expressed in the criminal law.† Furthermore, it is important for nurses to continue providing excellent nursing care across the HIV healthcare continuum from prevention through diagnosis and treatment to care and support.

Research papers, reports and grey literature all point to the challenges of providing nursing care given the current legal context. In these circumstances, it seems particularly prudent for nurses to clarify their role and responsibilities as members of the healthcare team and to have a clear understanding of their own obligations with respect to HIV non/disclosure.

It would certainly be helpful for nurses to use this guide as a tool to engage other members of the healthcare team and identify their respective roles and responsibilities.

This guide was primarily developed to support nurses who provide care to people living with HIV in Canada and offer some guidance on how to meet professional standards when dealing with non/disclosure in nursing practice. Guidance may not provide a definitive answer or indicate a correct course of action in a given circumstance. However, nurses should be aware that existing legal, ethical and professional frameworks can be relied upon to respond in a professionally sound manner to key questions and concerns.

There are areas of nursing practice that will remain uncertain, so it is important for nurses to work on a case-by-case basis in collaboration with the other members of the healthcare team, seek guidance when necessary, initiate referrals to legal services when required, engage in reflective practice, and be mindful of their professional obligations. Laws, professional standards and policies can change at any time. It is important for nurses to remain aware of any new developments because these will inform their own professional obligations.

Download the guide here.

UK: Young woman with HIV blogs about her personal experiences of HIV criminalisation

It was soon after my diagnosis with HIV that the nurse asked whether I would be reporting my then partner to the Police for transmitting HIV to me. I was stunned, simply stunned by the question. I suppose the nurse had to ask…or did the nurse need to pose the question?

What the REPEAL HIV Discrimination Act Means to Public Health | NASTAD Blog

By Oscar Mairena, Manager, Policy & Legislative Affairs and Viral Hepatitis This month, Congresswomen Barbara Lee (D-CA) and Ileana Ros-Lehtinen (R-FL) introduced bipartisan legislation, , the Repeal Existing Policies that Encourage or Allow Legal (REPEAL) HIV Discrimination Act.

US: HIV criminalisation survivor, Robert Suttle – why I support the REPEAL HIV Discrimination Act

When I was released from prison, in January 2011, I knew that I needed a new life plan. I was now not only a gay black man with HIV, but also a convicted felon and registered sex offender. My career had been in the state appellate court system, but they could not hire a convicted felon.

US: Poorly argued editorial against REPEAL HIV Discrimination Act

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Bahrain: Proposed law would require people with HIV to obtain judges' permission to marry

Bahrain citizens suffering from a hereditary or incurable disease – such as sickle cell anaemia, HIV, and hepatitis – will need to get permission from the courts to get married under a new draft bill currently being considered by the government, it has been reported. Under the current law, in place since 2004, it is compulsory for all engaged couples to get a certificate from the Health Ministry that states they have undergone premarital check-ups, where they are tested for hereditary diseases such as sickle cell anaemia and thalassaemia, and incurable diseases like HIV, and hepatitis.

While the outcome of the check-ups does not currently restrict them from going ahead with the marriage, a new bill could mean those who test positive for any of the hereditary or incurable diseases will need to get permission from the courts to pursue the marriage, according to a report by Gulf Daily News. A draft of the law is now before the National Assembly for revision. However, the Supreme Council for Islamic Affairs has already objected to the move and said it was against Sharia Law and basic human rights to stop anyone marrying someone they want to on the grounds of their health conditions. A doctor who is behind the proposal reportedly said “it was essential for judges to take the decision in such cases to prevent emotions from getting in the way.”

US: Excellent article by Ari Ezra Waldman explaining why US HIV criminalisation laws are unjust and how to move forward

In Georgia, a woman was sentenced to eight years in jail for failing to disclose her HIV status to a male partner, despite witnesses’ statements that he already knew she was HIV positive. There’s a man in Ohio who is serving 40 years for failing to tell his ex-girlfriend that he was HIV positive, even though the case was motivated by an ex-lover’s jealous rage.

Keeping Confidence: HIV and the criminal law from service provider perspectives (HJN, 2013) (3 of 4)

The Keeping Confidence one day conference was a free event to discuss findings from a report that we produced in conjunction with Birkbeck College. For more detailed information on the project please follow this link to the project description page: sigmaresearch.org.uk/projects/policy/project55/

Overview of updated 2013 BHIVA/BASHH position paper, ‘HIV transmission, the law and the work of the clinical team’

Dr Mary Poulton, Consultant and Clinical Head, Sexual Health and HIV, Kings College Hospital

Video produced by georgetownmedia.de