New case study and documentary examines how Zimbabwe repealed its HIV criminalisation law

Today, the HIV Justice Network (HJN), supported by the International AIDS Society (IAS), released a video documentary, “It is Time!” – How Zimbabwe Decriminalised HIV, along with a case study report examining Zimbabwe’s successful repeal of its HIV-specific criminal law.

The report, Reforming the Criminal Law in Zimbabwe: A Case Study, explores how advocates, legal experts, and community leaders worked together to repeal Section 79 of Zimbabwe’s Criminal Code, which criminalised HIV non-disclosure, exposure, or transmission. It outlines key strategies used in the campaign and lessons for other countries seeking to end HIV criminalisation.

The 24-minute documentary “It is Time!” brings this story to life through interviews with those involved in the multi-year effort. It also explores how advocates responded when a new law threatened to reintroduce HIV criminalisation.

Zimbabwe’s experience highlights several key strategies:

  • Coalition-building: Bringing together civil society, legal experts, and policymakers strengthened the advocacy effort.
  • Public health and human rights messaging: Advocates demonstrated how criminalisation undermined Zimbabwe’s HIV response.
  • Scientific evidence: Expert testimony helped policymakers understand the realities of HIV transmission.
  • Legislative strategy: Repealing Section 79 as part of a broader legal reform helped ensure success.

The documentary “It is Time!” is now available on the HIV Justice Network YouTube channel.

Reforming the Criminal Law in Zimbabwe: A Case Study (English, pdf, 9 pages) can be downloaded here.

The documentary and case study will also be added to the HIV Criminalisation Online Course, available for free as part of the HIV Justice Academy.

The case study and video were launched during a webinar co-hosted by HJN and IAS, featuring discussions on the significance of Zimbabwe’s law reform for the global movement against HIV criminalisation from:

  • Marlène​​​​ Bras, Director of HIV Programmes at the IAS;
  • Dr Ruth Labode, former legislator, and chairperson of the Parliamentary Portfolio Committee on Health in Zimbabwe;
  • Immaculate Owomugisha, a Ugandan lawyer and human rights activist who also sits on HJN’s Supervisory Board; and
  • HJN’s Senior Policy Analyst, Alison Symington.

Check back here soon to watch a recording of the webinar.

 

HIV Is Not a Crime Awareness Day:
A Call to Action in a Time of Crisis

Today, on HIV Is Not a Crime Awareness Day, we stand in solidarity with people living with HIV and our allies who not only continue to fight criminalisation, discrimination, and stigma, but also the sudden loss of funding amongst rising political opposition. This year, the urgency of our fight has never been clearer. As the devastating consequences of US policy shifts ripple across the world, we are not just advocating for change – we are fighting for our lives.

Last Wednesday, at the UK Parliament, we brought together key stakeholders to highlight how unjust HIV criminalisation laws, arrests and prosecutions persist in the UK and across the Commonwealth. Similar events are taking place globally, reinforcing that this issue transcends borders.

With Zero Discrimination Day tomorrow spotlighting the power of communities in the HIV response, #WeStandTogether – today and every day – to end the unjust laws and policies that punish people not only for living with HIV, but also because of who they are, who they love, or how they make a living. In a world where stigma still shackles and injustice still reigns, HIV Is Not a Crime Awareness Day is not just necessary – it’s urgent.

The fight for justice also brings hope. On Wednesday, 5 March at 9am EST / 3pm CET / 4pm CAT / 5pm EAT, join us for a special webinar with the International AIDS Society’s Heart of Stigma programme (register here), where we will premiere a powerful new documentary and toolkit on Zimbabwe’s successful decriminalisation of HIV. Zimbabwe’s victory proves that change is possible even in challenging political environments.

This is not just a moment. It’s a movement. The time for action is now.

Angola: Angola set to introduce new legislation against HIV/AIDS discrimination

Translated from Portuguese with Google translate. Scroll down for original article.

The National Institute for the Fight Against AIDS assures that the country will soon know a new legislation on the discrimination of people living with AIDS.

According to the Deputy Director General of the Institute, José Carlos Van-Dúnem, the bill is already in the Angolan parliament.

Meanwhile, tomorrow, March 1, the world marks the day of the zero discrimination project for people living with AIDS.

The National Institute for the Fight against AIDS will make the carnival party a time to widely disseminate the UNAIDS recommendation.


Angola vai em breve conhecer uma nova legislação sobre a discriminação da pessoa vivendo com sida

O Instituto Nacional da Luta Contra a SIDA, assegura que o país vai em breve conhecer uma nova legislação sobre a discriminação da pessoa vivendo com SIDA.

De acordo com o Director Geral Adjunto do Instituto, José Carlos Van-Dúnem, a proposta de lei já está no parlamento angolano.

Enquanto isso, amanhã, 1 de março, o mundo assinala o dia do projecto zero discriminação da pessoa vivendo com SIDA.

O Instituto Nacional de Luta contra a SIDA, vai fazer da festa do carnaval momento para divulgar em grande a recomendação da ONU-SIDA.

Spain: Landmark ruling in Spain recognises HIV-based discrimination for the first time

Groundbreaking ruling in Spain recognises HIV discrimination

Translated from Spanish with Deepl.com – Scroll down for original article

  • Cesida, the Legal Clinic of the University of Alcalá and the Fernando Pombo Foundation have achieved an important ruling that recognises for the first time discrimination based on the HIV status of a person.
  • The legal standing in court of social organisations such as CESIDA paves the way for greater protection of the rights of vulnerable people.

Cesida (the Spanish HIV/AIDS Coordinating Committee), the Legal Clinic of the University of Alcalá and the Fernando Pombo Foundation have obtained a pioneering court ruling on equality and non-discrimination based on HIV status in Spain. The case concerned discrimination suffered by a person with HIV in the administrative sphere. Specifically, a resolution of the Directorate General of Traffic (DGT) has been declared null and void on the grounds that it was discriminatory, as it reduced the validity of a citizen’s driving licence by half solely because he or she is living with HIV, without any justification and without following the established procedure.

The Citizens’ Anti-AIDS Commission of Navarre has accompanied “Pedro” throughout the process, providing support and advice from the outset. Their work, like that of other organisations that work directly with people with HIV, is essential to guarantee the defence of the rights of people with HIV and to offer the necessary support in these situations of discrimination. At CESIDA we would like to thank them for their commitment and that of all the organisations that fight against stigma and inequality every day.

Active legitimisation of social organisations

The case shows how social organisations such as CESIDA can better defend people in vulnerable situations under Law 15/2022 of 12 July, which is comprehensive for equal treatment and non-discrimination.

Oliver Marcos, general secretary of CESIDA, declared: ‘This ruling is a crucial step in the defence of the rights of people with HIV. There is still much to be done, but we are firmly committed to continuing to fight against the stigmatisation and discrimination suffered by people with HIV in our society.’

The active legitimisation of social organisations is a key channel for those who, due to their vulnerable situation, do not want to or cannot appear in a judicial process. Social organisations assume their legal representation by exercising their right to effective judicial protection without the affected person having to be part of the process, their authorisation being sufficient. In this way, the role of the third sector is reinforced when the organisations have among their aims the defence and promotion of human rights, without extending the scope to abstract or media defences without real content.

In this case, the person who felt that their right to equal treatment had been violated consulted the DGT’s decision with CESIDA. Three students, tutored by two professors, from the Legal Clinic of the University of Alcalá, which has collaborated with CESIDA for many years, considered that this could be a case of direct discrimination based on serological status. The Legal Clinic of the UAH then contacted the Fernando Pombo Foundation, which promotes and coordinates pro bono legal advice projects to improve the rule of law. The Fernando Pombo Foundation considered that this was a strategic issue for the achievement of its aims and also involved a team of pro bono lawyers from the law firm Gómez-Acebo & Pombo, and together they planned the legal strategy.

Ana Higuera, director of the Fernando Pombo Foundation, emphasises that ‘for us, participating in the defence of this case has been a stimulus for our mission. The admission of the claim by CESIDA, without the need for individual visibility of the person with HIV, represents a key advance in the legal approach to avoiding discrimination that, although not always visible, is real. Furthermore, the judgement’s analysis of how the discrimination occurred is clear and direct, which I consider essential to raise awareness of real situations of discrimination and differentiate them from others in which differential treatment is appropriate. In this sense, I believe that the judgement is educational and useful’.

This is one of the first cases in which, in accordance with Law 15/2022, the legitimacy of an association constituted for the purpose of defending human rights is recognised to combat a situation of discrimination in the field of public law.

The sentence: discrimination based on serological status in the renewal of a driving licence

On 24 October 2022, the DGT (Directorate General of Traffic) informed Pedro (not his real name) that his driving licence had been renewed for half the normal period (5 years instead of 10) and the only apparent reason was that he had disclosed during the medical check-up that he had HIV and was taking the corresponding antiretroviral treatment, without this affecting his ability to drive in any way.

Although the limitation on renewal may not be very relevant, the interest of the case lies in the recurrence with which situations similar to this one occur every day in the lives of people with HIV, who continue to be stigmatised despite advances in the treatment and prevention of transmission of the virus thanks to the efficacy and safety of antiretroviral drugs. Faced with this decision by the DGT, Pedro authorised CESIDA to lodge an appeal, which was possible thanks to the provisions of article 29 of Law 15/2022, which introduces the active legitimation of social entities with certain requirements.

Once the evidence had been presented and the arguments put forward by the team of pro bono lawyers from the law firm Gómez-Acebo & Pombo defending CESIDA’s claim, the Administrative Court ruled in favour of CESIDA and annulled the DGT’s decision on the grounds that it was discriminatory. This ruling is a pioneering pronouncement in our country. It literally says:

‘But discrimination occurs in several ways. The applicant is discriminated against when the procedure established in article 44.3 of the General Drivers Regulations is not followed. The applicant is discriminated against when, on appeal, the provision established in section 13 of Annex IV itself is not taken into account, according to which ‘except if the interested party accompanies a favourable medical opinion’, a report that appears on page 10 of the administrative file indicating that ‘the influence of Dovato on the ability to drive and use machines is nil or insignificant (see technical data sheet)’. The applicant is discriminated against when the decision adopted is a flat-out one, as evidenced by the fact that the administrative file begins with the applicant’s complaint, which is classified as an appeal, with no record of any previous action.

The renewal applicant is treated differently, as the established general rule (renewal for a period of ten years) does not apply to him. It is done because he is HIV positive, without any justification and without following the procedure that, in any case, would be established for this purpose.’

After the sentence was handed down, the DGT has already sent Pedro his new driving licence for the general period, without exceptions, having also notified the finality of the sentence a few days ago.

A precedent against discrimination based on serological status

Miguel Ángel Ramiro, coordinator of the Legal Clinic of the University of Alcalá, emphasised that ‘This case sets an important precedent in Spain as it is a pioneering ruling against discrimination based on HIV status, as well as for the recognition of the standing of social organisations’. And he added: ‘The participation of our students in this process has been key. Not only have they learned about applicable legal norms and procedural issues, but they have also contributed to the fight for equality and social justice, a fundamental aspect in the training of future professionals.’

Oliver Marcos, general secretary of Cesida, emphasised: ‘We encourage people with HIV to turn to associations when they feel their rights have been violated, showing that in this way changes are achieved. In addition, we place special emphasis on the fact that public administrations should be the guarantors of equality and avoid this type of discrimination in any area within their competence.’


Sentencia pionera en España reconoce la discriminación por el VIH

  • Cesida, la Clínica Legal de la Universidad de Alcalá y la Fundación Fernando Pombo logran una importante sentencia que reconoce por primera vez la discriminación por razón del estado serológico de una persona con el VIH.
  • La legitimación activa ante los tribunales de entidades sociales como CESIDA abre el camino a una mayor protección de los derechos de las personas en situación de vulnerabilidad.

Cesida (Coordinadora Estatal de VIH y sida), la Clínica Legal de la Universidad de Alcalá y la Fundación Fernando Pombo han obtenido un pronunciamiento judicial pionero en materia de igualdad y no discriminación por razón del estado serológico en España. El proceso ha enjuiciado la discriminación sufrida por una persona con el VIH en el ámbito administrativo. En concreto, se ha declarado la nulidad de una resolución de la Dirección General de Tráfico (DGT) por entender que la misma era discriminatoria ya que reducía la vigencia del permiso de conducción de un ciudadano a la mitad únicamente porque vive con el VIH, sin motivación alguna y con ausencia del procedimiento que, en todo caso, está establecido para ello.

La Comisión Ciudadana Antisida de Navarra ha acompañado a «Pedro» durante todo el proceso, brindándole apoyo y asesoramiento desde el primer momento. Su labor, al igual que la de otras entidades que trabajan directamente con personas con el VIH, es esencial para garantizar la defensa de los derechos de las personas con el VIH y ofrecer el respaldo necesario ante estas situaciones de discriminación. Desde CESIDA queremos agradecer su compromiso y el de todas las organizaciones que día a día luchan contra el estigma y la desigualdad.

Legitimación activa de las entidades sociales

El caso muestra cómo las organizaciones del ámbito social como CESIDA pueden defender mejor a personas en situación de vulnerabilidad en virtud de la Ley 15/2022, de 12 de julio, integral para la igualdad de trato y la no discriminación.

Oliver Marcos, secretario general de CESIDA, declaró: “Esta sentencia es un paso crucial en la defensa de los derechos de las personas con el VIH. Aún queda mucho por hacer, pero tenemos el firme compromiso de seguir luchando contra la estigmatización y la discriminación que sufrimos las personas con la infección por el VIH en nuestra sociedad.”

La legitimación activa de las entidades sociales resulta una vía clave para aquellas personas que por estar en una situación de vulnerabilidad no quieren o no pueden personarse en un proceso judicial. Las organizaciones sociales asumen su representación legal ejerciendo su derecho a la tutela judicial efectiva sin que la persona afectada tenga que formar parte del proceso, bastando su autorización. De este modo, se refuerza el papel del tercer sector cuando las organizaciones tengan entre sus fines la defensa y promoción de los derechos humanos, sin que se amplíen los ámbitos a defensas abstractas o mediáticas sin contenido real.

En este caso, la persona que sintió vulnerado su derecho a la igualdad de trato consultó con CESIDA la decisión de la DGT. Tres estudiantes, tutorizados por dos profesores, de la Clínica Legal de la Universidad de Alcalá, que colabora desde hace muchos años con CESIDA, consideraron que podría tratarse de un supuesto de discriminación directa por razón del estado serológico. La Clínica Legal de la UAH contactó entonces con la Fundación Fernando Pombo, que impulsa y coordina proyectos de asesoramiento jurídico pro bono para mejorar el Estado de Derecho. La Fundación Fernando Pombo consideró que se trataba de un tema estratégico para la consecución de sus fines e involucró también un equipo de abogados pro bono del despacho Gómez-Acebo & Pombo, y juntos planificaron la estrategia jurídica.

Ana Higuera, directora de la Fundación Fernando Pombo, destaca que “para nosotros participar en la defensa de este caso ha sido un estímulo para nuestra misión. La admisión de la reclamación por CESIDA, sin necesidad de una visibilidad individual de la persona con el VIH, representa un avance clave en el enfoque jurídico para evitar discriminaciones que, aunque no siempre son visibles, son reales. Además, el análisis que realiza la sentencia sobre cómo se ha producido la discriminación es claro y directo, lo que considero fundamental para concienciar sobre situaciones reales de discriminación y diferenciarlas de otras en las que el trato diferenciado es adecuado. En este sentido, creo que la sentencia es pedagógica y útil”.

Se trata de uno de los primeros casos que, conforme a la Ley 15/2022, se reconoce la legitimación de una asociación constituida con el fin de defender los derechos humanos para combatir una situación de discriminación en el ámbito del Derecho público.

La sentencia: discriminación por estado serológico en la renovación del permiso de conducir

El 24 de octubre de 2022 la DGT comunicó a Pedro (nombre ficticio) la renovación de su permiso de conducción reducida a la mitad de tiempo (5 años en lugar de 10) y la única razón aparente fue que éste comunicó en la revisión médica que tenía el VIH y tomaba el correspondiente tratamiento antirretroviral, sin que esto afectará en modo alguno a su capacidad de conducir.

Aunque la limitación de la renovación pudiera resultar poco relevante, el interés del caso está en la recurrencia con que situaciones similares a ésta se producen todos los días en la vida de las personas con el VIH, que siguen siendo estigmatizadas a pesar de los avances en el tratamiento y la prevención de la transmisión del virus gracias a la eficacia y seguridad de los fármacos antirretrovirales. Ante esta decisión de la DGT, Pedro autorizó a CESIDA a interponer un recurso contencioso-administrativo, lo que pudo hacerse gracias a la previsión del artículo 29 de la Ley 15/2022 que introduce la legitimación activa de las entidades sociales con ciertos requisitos.

Una vez practicada la prueba y expuestos los argumentos por el equipo de abogados pro bono del despacho Gómez-Acebo & Pombo que defendían la pretensión de CESIDA, el Juzgado de lo contencioso-administrativo falló en favor de CESIDA y ha anulado la resolución de la DGT por entender que la misma es discriminatoria. Esta sentencia es un pronunciamiento pionero en nuestro país. Textualmente dice:

“Pero es que la discriminación se produce de varias maneras. Se discrimina al solicitante al no seguirse el procedimiento establecido en el artículo 44.3 del Reglamento General de Conductores. Se discrimina al solicitante cuando en vía de recurso no se tiene en cuenta la previsión establecida en el propio apartado 13 del Anexo IV conforme a la que “excepto si el interesado acompaña un dictamen facultativo favorable”, informe que consta en el folio 10 del expediente administrativo en el que se indica que “la influencia del Dovato sobre la capacidad de conducir y utilizar máquinas es nula o insignificante (consultar ficha técnica)”. Se discrimina al solicitante cuando la decisión adoptada lo es de plano, como acredita el que el expediente administrativo se inicia con la reclamación del solicitante que se califica como recurso de alzada, sin que conste ninguna actuación previa.

Se trata de forma diferente al solicitante de la renovación, al que no se aplica la norma general establecida (renovación por plazo de diez años), se hace por su condición de seropositivo, sin motivación alguna y con ausencia del procedimiento que, en todo caso, estaría establecido para ello.”

Después de recibirse la sentencia, la DGT ya ha enviado a Pedro su nuevo permiso de conducir por el período general, sin excepciones, habiéndose, además notificado la firmeza de la sentencia hace unos días.

Un precedente contra la discriminación por razón del estado serológico

Miguel Ángel Ramiro, coordinador de la Clínica Legal de la Universidad de Alcalá, recalcó “Este caso sienta un precedente importante en España al ser un pronunciamiento pionero contra la discriminación por razón del estado serológico; así como para el reconocimiento de la legitimación activa de las entidades sociales”. Y añadió: “La participación de nuestros estudiantes en este proceso ha sido clave. No solo han aprendido sobre normas jurídicas aplicables y cuestiones procedimentales, sino que también han contribuido a la lucha por la igualdad y la justicia social, un aspecto fundamental en la formación de futuros profesionales.”

Oliver Marcos, secretario general de Cesida, enfatizó: “Animamos a las personas con el VIH a acudir a las asociaciones cuando sientan vulnerados sus derechos, evidenciando que de esta manera se logran cambios. Además, hacemos especial hincapié en que las administraciones públicas deben ser las garantes de la igualdad y evitar este tipo de discriminación en cualquier ámbito de su competencia.”

UK Parliamentary Reception Marks HIV Is Not A Crime Awareness Day

On Wednesday, 26th February, the HIV Justice Network (HJN) co-hosted a parliamentary reception in the UK Parliament in collaboration with the All-Party Parliamentary Group on HIV, AIDS and Sexual Health (APPGA) and the UK’s National AIDS Trust (NAT). The event, held to mark HIV Is Not A Crime Awareness Day, underscored the urgent need to combat HIV criminalisation in an era of rising global anti-rights movements and shrinking HIV funding.

Baroness Barker, Co-Chair of the APPGA, opened the event, acknowledging the significance of addressing HIV criminalisation within the broader context of human rights and public health.

The Global Scale of HIV Criminalisation

HJN’s Executive Director, Edwin J Bernard, was the first speaker, offering insights into the global state of HIV criminalisation, with a particular focus on Commonwealth countries. He highlighted key issues, including:

  • HIV criminalisation is state-sponsored stigma It punishes people living with HIV for acts that wouldn’t be crimes if they were HIV-negative, perpetuating discrimination and undermining public health efforts.
  • The scale of injustice is vast At least 80 countries have HIV-specific criminal laws, and prosecutions have taken place in at least 90 countries, with Commonwealth nations lagging in law reform.
  • Progress is happening, but remains under threat While 17 countries have reformed their laws, critical funding cuts jeopardise continued advocacy and reform efforts.
  • Sustained investment is essential Law reform takes time, and without long-term, flexible funding, the progress made could be reversed, leaving the most marginalised at risk.
  • The time to act is now Policymakers, funders, and advocates must step up to support efforts to end HIV criminalisation and ensure justice for people living with HIV.

Read the full text of his remarks here: HJN Executive Director’s Speech.

Insights from the UK: NAT’s New Report on HIV Criminalisation

Daniel Fluskey, Director of Policy, Research, and Influencing at NAT, presented key findings from NAT’s recently published report, Criminalisation of HIV Transmission: Understanding the Impact (read the report). The report offers several urgent recommendations for reform, including:

  • U=U should be central to legal considerations If an individual has an undetectable viral load, no investigation should take place.
  • Reckless transmission cases can force disclosure Legal proceedings can place individuals in unsafe situations, potentially exposing them to stigma and harm.
  • Police need comprehensive training Investigations must be fair, informed, and necessary to prevent unnecessary criminalisation.
  • Voluntary attendance should replace arrest Arrest should not be the default approach when investigating HIV-related cases.
  • All stakeholders must receive training Including people living with HIV, support staff, and clinicians, to ensure a more informed legal and healthcare environment.

A Personal Story: The Impact of Criminalisation

The event featured a powerful testimony from a man who was unjustly arrested for a crime that never existed—there was no risk, no harm. As a police officer himself, he never imagined he would experience such a humiliating and disproportionate arrest. Multiple officers arrived at his home and charged him with ‘attempted grievous bodily harm’ without explanation or the chance to respond. 

It was only 20 hours into his unlawful detention, during disclosure before his interview, that he was finally told why he had been arrested. At that point, he disclosed his U=U status – evidence that should have prevented his arrest in the first place.

Although he was never formally charged, the case was eventually dismissed as “Entered in Error” after a review of his medical records. Yet, the arrest remains on his record, casting a shadow over his career and deeply impacting his mental health.

“I did nothing wrong,” he concluded, “yet I am still fighting for justice.”

The Forgotten Impact of Past Prosecutions

Sophie Strachan, Director of Sophia Forum, shared her own experience of being diagnosed with HIV while in prison more than two decades ago. She also highlighted the case of the first woman prosecuted in England & Wales for ‘reckless’ HIV transmission. Convicted in 2006 and sentenced to 32 months in prison, she was vilified by the media for a ‘crime’ that would not be prosecuted today under current guidelines.

Nearly 20 years later, this woman remains deeply affected by her conviction. Despite wanting to move forward, her criminal record has made it impossible for her to work or even volunteer. “She is a virtual recluse, terrified that people will still recognise her,” Sophie explained. Her case remains a stark reminder of the lasting impact of unjust prosecutions.

Building Momentum for Change

The reception was attended by members of the UK House of Commons and House of Lords, as well as representatives from UK and international NGOs, philanthropic funders, and advocates working to end HIV criminalisation worldwide.

The discussions reinforced the urgent need for continued advocacy, law reform, and investment to end the unjust criminalisation of people living with HIV. As our Executive Director emphasised: HIV is not a crime. The time to act is now.

US: Lashanda Salinas and Kerry Thomas share their experiences of being incarcerated under HIV criminalisation laws

I want my name back

Lashanda Salinas and Kerry Thomas share their experiences of being incarcerated under state HIV criminalization laws—and talk about how they’re working to change them

In 2006, a former boyfriend accused Lashanda Salinas of never having disclosed her HIV status while they had been dating. Unable to prove she had told him (and that she had an undetectable viral load, meaning she was unable to transmit HIV during sex), Salinas accepted a plea deal and was convicted under Tennessee’s criminal exposure to HIV law. She was sentenced to three years’ probation—and then learned she was required to register as a sex offender. In May 2023, Tennessee Governor Bill Lee signed a bill amending the state’s law, allowing people charged with criminal exposure of HIV to be removed from the registry. Less than two months later, Salinas’s name was taken off the list. She’s started to open up about her experience, talking with audiences across the country, from small groups of individuals living with HIV to state and federal elected officials. She is an active member of the Tennessee HIV Modernization Coalition, a Health Not Prisons advocate, member of The Elizabeth Taylor AIDS Foundation Council of Justice Leaders and is a graduate of Justice Institute 3.0, a program of The Sero Project, a national advocacy and HIV decriminalization organization for people with HIV.

Kerry Thomas has been living with HIV for 36 years, having served 15 years of a 30-year prison sentence at the Idaho State Penitentiary. Although he was undetectable and had used a condom, he was convicted of not telling the woman he had had sex with of his HIV status. Like many state laws that criminalize HIV, Idaho’s law took no account of Thomas’s undetectable status and that no transmission of the virus had occurred. Now 60, Thomas is the community decriminalization strategist for The Sero Project. He also contributes to several organizations, including the Center for HIV Law and Policy’s Aging Advisory Council, the U.S. People Living with HIV Caucus, the Idaho Coalition for HIV Health and Safety and the Vera Institute of Justice’s Designed for Dignity project.

The two advocates talked about their experiences and insights in a Zoom conversation for POSITIVELY AWARE in November. The 80-minute exchange has been excerpted and edited for brevity and clarity. —Rick Guasco

Kerry Thomas: Let’s start with a little bit of your story, wherever you want to start.

Lashanda Salinas: Back in 2006 I was dating a gentleman. We met online. Before we met [in person] I told him, I’m HIV-positive—are you okay with that? He said he was okay with it, and we proceeded to date. But the relationship wasn’t what I thought it would be, so we decided to break up. About a week or two after we broke up, two police officers walked into my job and asked to speak to me. The first thing that ran through my head was, What did I do? I had just moved to Nashville a month or so earlier. They tell me, Your boyfriend has filed charges against you stating that you did not tell him you were HIV-positive. I said I had told him. And they’re like, Well, do you have proof? I said that I didn’t. I didn’t think I ever needed proof. That night, they arrested me. I was under a $100,000 bond. There was no way I was going to ask my family to come up with 10% [to be released from custody]. I wasn’t about to do that. So, I stayed in there about two days shy of two months. My public defender came back with a plea deal, three years’ probation. I didn’t want to take the plea because I knew I was innocent, but in order to get out and spend time with my family, because my father had just passed, I took the plea. I thought, I can get out, spend time with my family and not have to worry about anything. When I got out, my probation officer calls me while I’m at work and tells me that I have to register as a sex offender. I’m like, You got the wrong person. She said because I was charged with criminal exposure of HIV, that this was part of the sentence. I was on the sex offender registry for about 17 years, when Governor Lee amended the criminal exposure law to remove the sex offender registration. I was the first person with HIV to come off the registry. And from there, my life has taken off.

Kerry: You mentioned that you didn’t want to ask your family for bond money. Why? Was it financial?

Lashanda: It was financial. I knew that my family wasn’t able to come up with $10,000. I didn’t want to put that on my mom, because she was at the hospital every day to see my father. It was just something I didn’t want to ask them for.

Kerry: Stigma is such a big part of HIV criminalization—someone being able to just make an accusation. What were your thoughts and feelings when the police came to your job?

Lashanda: When they said that my boyfriend had pressed charges because I didn’t tell him I was HIV positive, my heart sank to my feet.

Kerry: I’m assuming you had never been arrested before?

Lashanda: Well, I have, but nothing like this. When you get arrested for a little thing, you pretty much know what the outcome will be. I knew this was a big thing. I thought I would have a bond of maybe $100 and then get out of there. But when I went before the judge and she said $100,000, I was like, Are you serious?

Kerry: If you look at cases across the country, that’s one of the things that we notice, extremely high bonds that are placed again and again. The narrative from the public becomes, Holy cow, why would they give someone such a high bond? She must’ve done something serious. Instantly, it’s no longer about medical facts. It’s about stigma and criminalizing the person, dehumanizing them. Because you’re a person living with HIV, they paint it as if you’re an imminent threat to society. If we let you out on a low bond, you’re going to try to spread this to everybody.

Lashanda: Exactly, and that’s what they did with me. I was trying to get a bond reduction. The prosecutor said, You’ve got family in such and such cities; you’re a flight risk. Because he said flight risk, the judge agreed and there was no bond reduction.

Kerry: One thing I want folks to know because it’s not talked about much, and if it’s something that you’re not comfortable speaking to, I understand. Can you describe what it was like when they put the [handcuffs] on you? Especially from a woman’s standpoint.

Lashanda: Luckily, I had a woman police officer there. When she told me to turn around and put my hands behind my back, and I did that, you could hear a pin drop, it was so quiet. And then you hear the cuffs clink. At that time, I was like, You are about to go to jail for something you really don’t know nothing about. And I’ll never forget the booking process.

Kerry: What was that like?

Lashanda: Oh, my Lord. It made me feel dirty because you’ve got these males patting you down, touching you where you don’t feel comfortable for them touching you, and then they ask you all these questions, like, Have you been arrested before? If you have been arrested, what was it for? When did you get arrested?

Kerry: Do you think that they knew that you were a person living with HIV?

Lashanda: I don’t think they knew because they didn’t treat me any different. But the thing was, after the booking, they put you in what they call a holding cell. That holding cell, to me, was like I was in a dog kennel.

Kerry: Were you in there by yourself?

Lashanda: No. This is where they put everybody. It’s an open space that’s a fenced in pen. I just felt like a dog. After the bond hearing, I was placed in what they call a pod with all these other women. How they heard about my charge before you get there, I will never know.

I went to sleep, woke up the next morning for breakfast, and the lady that was in the room with me said, Oh, you have HIV. I’m like, How do you know I have HIV? What are you talking about?She said, Well, your charges are criminal exposure of HIV. And I’m like, Oh, God, she knows I’m HIV-positive. How is she going to treat me? Is she going to treat me like the judge did? I told her, Yes, I am HIV-positive. I am undetectable. She said she doesn’t know what “undetectable” meant. But you can’t give it to me, can you? she asked. I was like, Just by sleeping in the room with you, on my own in this bed? How am I supposed to give it to you? She said, Well, I heard you can get it by touching something that an HIV-positive person has touched. At that point, I just sat her down and explained it to her. Ma’am, by you touching my toothbrush or touching my towel or whatever, you’re not going to get HIV. It doesn’t work that way. The sad part was that the lady was 50-something years old; I was in my late 20s at the time and was having to explain this to her.

In there, you’re always thinking, What’s the next step? What do I need to do to get myself out of the situation? You hear about the public defenders having a bad rep, they don’t help you with your case or they don’t care. But I have to applaud my public defender. After my bond hearing, her next step was to have somebody from Vanderbilt [University], from their infectious disease department, come and basically state, She’s undetectable, there is no way she can pass HIV on to anybody. But then the plea came—three years’ probation. I didn’t want to take it, but I did.

Kerry: Why did you?

Lashanda: I took that plea only to get out and be with my family.

Kerry: There’s a public narrative that only guilty people take a plea, only guilty people need a lawyer. So, if you didn’t take the plea?

Lashanda: A year and a half in a women’s prison and a year and a half on probation. I was thinking of taking the plea, but then I was like, No, I’m innocent. I’m not taking that plea.And then I had to request a furlough—that’s what I thought I was going to court for that day, but there was the plea with three years’ probation. I’m sitting there debating, Okay, do you want to take this plea or do you take the furlough, go to the funeral and come back.

Kerry: Whose funeral was it?

Lashanda: It was for my father. [Salinas’ father died in the hospital while she was in custody.] I was thinking, Lashanda, what do you want to do? You know you’re innocent, but people are making it out that you’re guilty, that you did not tell [your boyfriend]. If I take this plea, are people going to think that I’m guilty? I made the decision to take the three years’ probation just to get out and be with my family because that seemed like the only way I could get out.

Kerry: Do you bake? Have you ever made bread?

Lashanda: No, I’ve never made bread.

Kerry: You get the dough, you spin it around, put it on the table and you start kneading it. You soften

it up a bit. That’s what they do at the prosecutor’s office. I call it knead ’em and plead ’em. They put you

in difficult conditions. They’re kneading you, then they hit you with a plea deal. That’s knead ’em and plead ’em. That’s why I’ll push back on anyone who says only guilty people take a plea. No, not when you’re in that oven.

It’s amazing to me how our stories are so similar. This is my 14th month since returning to the community after serving 15 years under Idaho’s criminalization statute. They didn’t play around. I had a $1 million bond. Basically, you’re saying, This dude ain’t getting out. And then you compound that with the ignorance surrounding HIV. If he’s got a $1 million bond, he must be a real threat to society.

I remember going for sentencing the day after I accepted the plea. I was sentenced to 30 years of incarceration. Similar to your circumstances, one of the reasons I took the plea was because at the time, both my parents were elderly. Because of the bond, the media attention on my case was through the roof. As naïve as I was, I thought the best thing to do to cut off the media attention was to accept the plea, go to the judge and for the judge to make an honest decision. Not one time in the sentencing hearing did anything about HIV come up. It was about villainizing the individual. Not one time in the sentencing does the fact that you’re undetectable come up.

Lashanda: It becomes about you and your character, exactly.

Kerry: We need to talk about the scientific facts, the medical facts, about HIV.

I think it’s important that folks understand that both of us are doing amazing things now. Maybe you can share a little bit of some of the projects you’ve worked on after incarceration.

Lashanda: Where do I start?

Kerry: How about start with why? Why did you choose to get involved in HIV decriminalization advocacy?

Lashanda: I chose to get involved after I realized that so many people were being criminalized. There’s advances in medication for HIV, and I realized that the laws didn’t match today’s science. I knew there were people out there who wanted to speak, but were afraid.

Kerry: Afraid of what?

Lashanda: Afraid of being stigmatized, of being told, you’re dirty. At first, I was scared to speak out because I was like, Now everybody in the world is going to know I’m HIV-positive. So I had a conversation with myself, had a conversation with my family to ask how they felt about it. Everybody said they were okay. I put on the whole armor of God to do this. I will take the beatings and the backlash on behalf of people who feel they cannot speak for themselves.

Kerry: I think we’re similar that way. And what I had to realize is that part of my recovery, for lack of a better term, has been I do it because no one should ever have to go through the experience of HIV criminalization. I’ve been very blessed that almost from the moment of my arrest to this day, that I’ve had a lot of support. I’m thankful for that.

The question for me is, What do I want my son to think of me? When I was arrested, my son was 14 years old. He had just turned 14. I made a conscious choice to do my time with dignity. How I’m gonna do my time is how I define myself as an adult, as a man. I’m not talking about machismo stuff, but I’m gonna live my life the best I can, on my terms. Part of the willingness to have a conversation like this is to reclaim that. I want my name back, I want some respect on my name.

Lashanda: Exactly. I want that back.

Kerry: That’s my motivation. That is decriminalization to me.

I was very fortunate to have an opportunity to work with The Sero Project upon my release. I worked with them for 12 years while I was incarcerated. I did 15 [years], 12 of those years was being a part of The Sero Project, on their board and in other capacities. That has been my focus, my outreach into the community. I love that you said that you’re motivated to advocate for the many people who don’t have the capacity.

Lashanda: When I was in jail, I had no resources whatsoever. There was no support besides my family, but I needed somebody else there. I didn’t have anybody to tell me what criminal exposure to HIV was, no one to give me advice as to what I should do. When I felt like I needed to cry, I had nobody.

Kerry: And there was nobody there to tell you that it was going to be okay.

Lashanda: Exactly. Nobody, not even me. I didn’t say that to myself because of the simple fact I didn’t know if it was gonna be okay.

Kerry: I’m often asked, How did you do 15 [years]? You know what? I can’t do 15 years, but I can do today. And God willing, I can do tomorrow. That literally became my mantra, I can do today.Sometimes

I had to break it down—I can do this. I can do this hour. Sometimes it was, I can do this minute.

Lashanda: Exactly.

Kerry: Early on, I said, There’s no such thing as a bad day. I never had 24 hours of that. I might’ve had an hour here, an hour there. I’ve had multiple bad moments in the course of a day, over the course of a lifetime, but God, I’m blessed. There’s something to be thankful for every day, if not every moment, and that speaks to gratitude.

One thing that The Sero Project does is that we have our HINAC [HIV Is Not A Crime] 6 training academy [to be held May 31–June 3 at North Carolina State University in Raleigh]. It’s more than just an academy. It’s about coming together in a sense of community. The training is teaching us how to love each other and work together.

Lashanda: I think of it as, I’m going somewhere to visit with my family, to come together with one goal. We’re going to see how we can take this a step further.

Kerry: I always say HIV is not a crime, but choosing to be ignorant of it is. What is it that motivates you to swing your feet out of bed?

Lashanda: It all boils down to somebody needs me. So I’ve got to swing my feet out of this bed and get started. If everybody else can do it, I can do it as well.

‘There’s advances in medication for HIV, and I realized that the laws didn’t match today’s science.’

Lashanda Salinas

Kerry: Yes, you can. You can reach out to organizations like Sero, reach out to your local clinic, to your state’s legislature. You can reach out and get training. You can stand up.

Lashanda: I think I want to do one-on-one advocacy training. I don’t know what that looks like yet…

Kerry: Why not?

Lashanda: Because when I started, there was no blueprint. I was just throwing it out there. And it just so happened that Sero caught me.

Kerry: If you want to do one-on-one advocacy training, we can plan for that. I choose the term mentorship. I’ll even take it further and call it peer support. Because that’s what it takes, having one-on-one life conversations with folks. That’s what moves the needle.

Lashanda: This is one of the ways to get started in advocacy. Reach out to an organization. It all starts with reaching out.

Kerry: It’s empowering. Just like with our HIV care, we have to become an active participant in our own survival. Surviving criminalization is the same thing. You gotta be an active participant in your own survival.

For more information about the HIV Is Not A Crime 6 summit, GO TO seroproject.com/hinac.

2024 in review: Progress amid challenges

As the world grappled with shifting political landscapes and evolving public health priorities, the fight against HIV criminalisation remained a critical, yet often overlooked, human rights issue. The HIV Justice Network and our HIV JUSTICE WORLDWIDE coalition partners navigated a year of both challenges and progress, underscoring the ongoing need for vigilance and advocacy in the face of unjust HIV-related laws and practices.

Rising Case Numbers and Persistent Challenges

In 2024, reported HIV criminalisation cases rose to 65, compared with 57 in 2023 and 50 in 2022. While these numbers remain lower than the 119 cases prior to COVID in 2019, they highlight a troubling upward trend. Cases were documented across 20 countries, with Russia and the United States leading at 26 and 11 cases, respectively. Other notable contributors included Spain (3), Argentina (2), Belarus (2), Senegal (2), and Singapore (2).

In Panama, a 14-year prison sentence for alleged HIV transmission marked the country’s first reported case. Uruguay also saw its first case, where spitting was classified as an ‘assault on health,’ despite no risk of transmission.

These figures only scratch the surface, as media-reported cases represent a fraction of the actual global burden. Civil society organisations uncovered hundreds of previously unreported cases, particularly in Eastern Europe and Central Asia, while the Williams Institute’s research in the U.S. revealed hundreds more, including detailed analyses in Indiana, Maryland, Mississippi, and Ohio.

High-Profile Cases and Intersectional Injustices

Several cases drew international attention in 2024, shedding light on the intersectional injustices of HIV criminalisation.

In Qatar, a British-Mexican national’s arrest after a Grindr sting operation also emphasised the perilous intersection of HIV status, gay identity, and discriminatory laws. Following a public campaign and diplomatic efforts, the individual was released and allowed to leave the country. Similarly, Senegal reported two cases stemming from police raids on LGBTQ individuals, further highlighting how HIV criminalisation disproportionately affects other criminalised and marginalised groups.

A particularly concerning case in South Africa resulted in a life sentence plus ten years for a soldier accused of HIV transmission and non-disclosure. The verdict reflected outdated views equating HIV to a death sentence and reinforced harmful legal interpretations equating HIV non-disclosure with rape. Previously only Canada had framed HIV non-disclosure in this way, and this framing has been roundly criticised by HIV and human rights groups in the country and rejected by Canada’s Justice Committee.

Legal Reforms: Progress and Setbacks

Efforts to modernise or repeal unjust HIV laws gained ground in 2024, with notable victories including:

  • Mexico: Repeal of ‘danger of contagion’ laws in Colima and Mexico City.
  • Tennessee, U.S.: Elimination of mandatory sex offender registration for ‘aggravated prostitution’.
  • Singapore: Introduction of an undetectable viral load defence in HIV exposure laws.

In Uganda, the Constitutional Court struck down the death penalty provision in the Anti-Homosexuality Act 2023, but upheld other regressive aspects, highlighting the mixed fortunes of legal challenges in hostile environments.

There was also disappointing news from Canada, where a federal review of its legal approach to HIV non-disclosure was abandoned, despite tireless advocacy efforts. Other retrogressive moves included Guinea’s harsher penalties for ‘intentional HIV transmission’, Tennessee’s expansion of aggravated rape provisions to include people living with HIV, and reports from China that the municipality of Chongqing was revising laws concerning STI transmission as part of a broader crackdown on HIV.

Policy Developments and Advocacy Wins

Policy shifts in 2024 reflected growing recognition of human rights in public health.

In Uzbekistan, the Ministry of Health reduced the number of prohibited professions, including hairdressing, for people living with HIV.

In the U.S., once the global leader in HIV criminalisation, significant legal and policy improvements continue to be secured. Updated guidelines allowed parents living with HIV to breastfeed, while increased transparency on molecular HIV surveillance marked a small but critical step forward. Nevertheless, unscientific prosecutions were still seen in the U.S. in 2024: conduct that carries little to no risk of transmission was criminalised, including spitting, throwing blood, and sex with an undetectable viral load.

Dedicated advocacy also prevented new criminalisation laws in Uganda and Zimbabwe, the latter rejecting an attempt to reinstate a repealed law criminalising HIV transmission. These successes underscore the power of collective action in resisting harmful legislation.

Courts Upholding Justice

Courts in several countries provided a beacon of hope by rejecting unjust prosecutions:

  • Kenya: A court threw out a baseless charge of deliberate HIV transmission against a domestic worker accused of spitting in food.
  • Italy: A man was acquitted due to a ‘very low viral load’, with the court recognising the negligible transmission risk.
  • Greece: The European Court of Human Rights ruled that the forced testing and public shaming of sex workers violated their rights, setting a vital precedent.

The Road Ahead

Despite these wins, the persistence of HIV criminalisation laws and prosecutions and their disproportionate impact on marginalised communities serve as a sobering reminder of the work still required. As we move into 2025, facing an ever-emboldened anti-rights movement, we remain committed to challenging unjust laws, building power with affected communities, and advocating for evidence-based, rights-affirming approaches.

In a year marked by both setbacks and progress, the global movement against HIV criminalisation demonstrated resilience and resolve. The delicate balance of successes and challenges reminds us that vigilance, advocacy, and solidarity are more crucial than ever in our fight for justice and equality.

US: Trump’s promise of mass deportations is deepening mistrust of the health care system among California’s immigrants

Community health workers say fear of deportation is already affecting participation in California’s Medicaid program.

President-elect Donald Trump’s promise of mass deportations and tougher immigration restrictions is deepening mistrust of the health care system among California’s immigrants and clouding the future for providers serving the state’s most impoverished residents.

At the same time, immigrants living illegally in Southern California told KFF Health News they thought the economy would improve and their incomes might increase under Trump, and for some that outweighed concerns about health care.

Community health workers say fear of deportation is already affecting participation in Medi-Cal, the state’s Medicaid program for low-income residents, which was expanded in phases to all immigrants regardless of residency status over the past several years. That could undercut the state’s progress in reducing the uninsured rate, which reached a record low of 6.4% last year.

Immigrants lacking legal residency have long worried that participation in government programs could make them targets, and Trump’s election has compounded those concerns, community advocates say.

The incoming Trump administration is also expected to target Medicaid with funding cuts and enrollment restrictions, which activists worry could threaten the Medi-Cal expansion and kneecap efforts to extend health insurance subsidies under Covered California to all immigrants.

“The fear alone has so many consequences to the health of our communities,” said Mar Velez, director of policy with the Latino Coalition for a Healthy California. “This is, as they say, not their first rodeo. They understand how the system works. I think this machine is going to be, unfortunately, a lot more harmful to our communities.”

Alongside such worries, though, is a strain of optimism that Trump might be a boon to the economy, according to interviews with immigrants in Los Angeles whom health care workers were soliciting to sign up for Medi-Cal.

Selvin, 39, who, like others interviewed for this article, asked to be identified by only his first name because he’s living here without legal permission, said that even though he believes Trump dislikes people like him, he thinks the new administration could help boost his hours at the food processing facility where he works packing noodles. “I do see how he could improve the economy. From that perspective, I think it’s good that he won.”

He became eligible for Medi-Cal this year but decided not to enroll, worrying it could jeopardize his chances of changing his immigration status.

“I’ve thought about it,” Selvin said, but “I feel like it could end up hurting me. I won’t deny that, obviously, I’d like to benefit — get my teeth fixed, a physical checkup.” But fear holds him back, he said, and he hasn’t seen a doctor in nine years.

It’s not Trump’s mass deportation plan in particular that’s scaring him off, though. “If I’m not committing any crimes or getting a DUI, I think I won’t get deported,” Selvin said.

Petrona, 55, came from El Salvador seeking asylum and enrolled in Medi-Cal last year.

She said that if her health insurance benefits were cut, she wouldn’t be able to afford her visits to the dentist.

A street food vendor, she hears often about Trump’s deportation plan, but she said it will be the criminals the new president pushes out. “I’ve heard people say he’s going to get rid of everyone who’s stealing.”

Although she’s afraid she could be deported, she’s also hopeful about Trump. “He says he’s going to give a lot of work to Hispanics because Latinos are the ones who work the hardest,” she said. “That’s good, more work for us, the ones who came here to work.”

Newly elected Republican Assembly member Jeff Gonzalez, who flipped a seat long held by Democrats in the Latino-heavy desert region in the southeastern part of the state, said his constituents were anxious to see a new economic direction.

“They’re just really kind of fed up with the status quo in California,” Gonzalez said. “People on the ground are saying, ‘I’m hopeful,’ because now we have a different perspective. We have a businessperson who is looking at the very things that we are looking at, which is the price of eggs, the price of gas, the safety.”

Gonzalez said he’s not going to comment about potential Medicaid cuts, because Trump has not made any official announcement. Unlike most in his party, Gonzalez said he supports the extension of health care services to all residents regardless of immigration status.

Health care providers said they are facing a twin challenge of hesitancy among those they are supposed to serve and the threat of major cuts to Medicaid, the federal program that provides over 60% of the funding for Medi-Cal.

Health providers and policy researchers say a loss in federal contributions could lead the state to roll back or downsize some programs, including the expansion to cover those without legal authorization.

California and Oregon are the only states that offer comprehensive health insurance to all income-eligible immigrants regardless of status. About 1.5 million people without authorization have enrolled in California, at a cost of over $6 billion a year to state taxpayers.

“Everyone wants to put these types of services on the chopping block, which is really unfair,” said state Sen. Lena Gonzalez, a Democrat and chair of the California Latino Legislative Caucus. “We will do everything we can to ensure that we prioritize this.”

Sen. Gonzalez said it will be challenging to expand programs such as Covered California, the state’s health insurance marketplace, for which immigrants lacking permanent legal status are not eligible. A big concern for immigrants and their advocates is that Trump could reinstate changes to the public charge policy, which can deny green cards or visas based on the use of government benefits.

“President Trump’s mass deportation plan will end the financial drain posed by illegal immigrants on our healthcare system, and ensure that our country can care for American citizens who rely on Medicaid, Medicare, and Social Security,” Trump spokesperson Karoline Leavitt said in a statement to KFF Health News.

During his first term, in 2019, Trump broadened the policy to include the use of Medicaid, as well as housing and nutrition subsidies. The Biden administration rescinded the change in 2021.

KFF, a health information nonprofit that includes KFF Health News, found immigrants use less health care than people born in the United States. And about 1 in 4 likely undocumented immigrant adults said they have avoided applying for assistance with health care, food, and housing because of immigration-related fears, according to a 2023 survey.

Another uncertainty is the fate of the Affordable Care Act, which was opened in November to immigrants who were brought to the U.S. as children and are protected by the Deferred Action for Childhood Arrivals program. If DACA eligibility for the act’s plans, or even the act itself, were to be reversed under Trump, that would leave roughly 40,000 California DACA recipients, and about 100,000 nationwide, without access to subsidized health insurance.

On December 9, a federal court in North Dakota issued an order blocking DACA recipients from accessing Affordable Care Act health plans in 19 states that had challenged the Biden administration’s rule.

Clinics and community health workers are encouraging people to continue enrolling in health benefits. But amid the push to spread the message, the chilling effects are already apparent up and down the state.

“¿Ya tiene Medi-Cal?” community health worker Yanet Martinez said, asking residents whether they had Medi-Cal as she walked down Pico Boulevard recently in a Los Angeles neighborhood with many Salvadorans.

“¡Nosotros podemos ayudarle a solicitar Medi-Cal! ¡Todo gratuito!” she shouted, offering help to sign up, free of charge.

“Gracias, pero no,” said one young woman, responding with a no thanks. She shrugged her shoulders and averted her eyes under a cap that covered her from the late-morning sun.

Since Election Day, Martinez said, people have been more reluctant to hear her pitch for subsidized health insurance or cancer prevention screenings.

“They think I’m going to share their information to deport them,” she said. “They don’t want anything to do with it.”

Senegal: “The application of criminal law is an injustice against people living with HIV”

A magistrate laments the ‘unfair’ criminalisation of HIV transmission

Translated from French with Deepl.com. Scroll down for the original article.

The deputy director of human rights, Babacar Diouf, deems it unfair to criminalise the transmission of HIV-AIDS, except in cases of intentional transmission.

‘The application of criminal law is an injustice against people living with HIV, unless a person deliberately decides to infect another person’, said the magistrate.

He was hosting a conference on the theme of ‘Following the path of rights to eliminate AIDS in Senegal’, an event organised on Wednesday as part of the celebration of World AIDS Day by the National AIDS Council.

According to the deputy director of human rights at the Ministry of Justice, the right to health in Senegal is not subject to judicial review. ‘What’s not working is criminalisation. This is an obstacle to the fight against AIDS’, he maintained.

‘The criminalisation of HIV is detrimental to rights. It is unfair when it targets a person who cannot disclose his or her status’, he argued.

‘We need to be aware that proclaimed rights that are not effective are of no use’, he said, pointing out that “the law on AIDS is unknown to some judicial actors”.

‘The lack of information among the judiciary is a hindrance to the fight against AIDS. They have no information about certain health data’, he said.

With this in mind, Babacar Diouf called on the National AIDS Council to ‘equip the judiciary’ so that they can play a greater role in the fight against AIDS.

He believes it is imperative to combat stigmatisation and discrimination.

Samba Cor Sarr, Director of Cabinet at the Ministry of Health and Social Action, pointed out that the theme of World AIDS Day, ‘Following the path of rights to eliminate AIDS in Senegal’, revived the issue of human rights in the fight against HIV.

‘The path of the fight against AIDS is strewn with rights-related issues: the right to health, the right to access to care and treatment, the right to a favourable environment, the right to a fairer, more equitable world’, listed the representative of the Minister of Health.

He also spoke of ‘the right to life, to a positive life for all those directly or indirectly affected by HIV’.

He also emphasised that Senegal, like other countries, still faces ‘significant challenges in the fight against HIV/AIDS’, including strengthening the fight against HIV at community level.

These challenges include stepping up the fight against HIV at community level. These challenges include stepping up care for children living with HIV, engaging young people and combating stigma and discrimination. Samba Cor Sarr also cited the fight against inequalities in access to care and the strengthening of support mechanisms.

In the Senegalese context, he added, this year’s theme ‘takes on its full meaning insofar as it enables a more specific and tailored response to the needs of communities affected by HIV/AIDS in order to reduce stigma and discrimination’.


Un magistrat déplore la pénalisation de la transmission du Sida, « une injustice »

Dakar, 12 déc (APS) – Le directeur adjoint des droits humains, Babacar Diouf, juge injuste la pénalisation de la transmission du VIH Sida, sauf dans les cas de contamination intentionnelle.

« L’application du droit pénal est une injustice contre les personnes vivant avec le VIH, sauf si une personne décide délibérément de contaminer une autre personne », a déclaré le magistrat.

Il animait une conférence sur le thème « Suivre le chemin des droits pour l’élimination du Sida au Sénégal », une activité organisée mercredi dans le cadre de la célébration de la Journée mondiale de lutte contre le Sida par le Conseil national de lutte contre le Sida.

Selon le directeur adjoint des droits humains au ministère de la Justice, le droit de la santé n’est pas judiciarisé au Sénégal. « Ce qui ne va pas, c’est la pénalisation. Il s’agit d’un obstacle à la lutte contre le Sida », a-t-il soutenu.

« La pénalisation du VIH nuit au droit. Elle est injuste lorsqu’elle vise une personne qui ne peut pas dévoiler son statut », a-t-il argumenté.

« Nous devons savoir que des droits proclamés qui ne sont pas effectifs n’ont pas d’utilité », a-t-il dit, en faisant observer que « la loi sur le Sida est inconnue de certains acteurs judiciaires ».

« Le manque d’information des acteurs judiciaires est un frein à la lutte. Les acteurs n’ont pas d’information sur certaines données sanitaires », a-t-il indiqué.

Dans ce sens, Babacar Diouf invite le Conseil national de lutte contre le Sida à « outiller les acteurs judiciaires », afin qu’ils puissent mieux participer à la lutte contre le Sida.

Il juge impératif de lutter contre la stigmatisation et la discrimination.

Samba Cor Sarr, directeur de cabinet du ministère de la Santé et de l’Action sociale, a pour sa part relevé que le thème consacré à la Journée mondiale de lutte contre le Sida, à savoir « Suivre le chemin des droits pour l’élimination du Sida au Sénégal », fait renaitre la question des droits humains dans la lutte contre le VIH.

« Le chemin de la lutte contre le Sida est parsemé de problématiques liées aux droits : droit à la santé, droit à l’accès aux soins et aux traitements, droit à un environnement favorable, droit à un monde plus juste, plus équitable », a énuméré le représentant du ministre de la Santé.

Il a également évoqué « le droit à la vie, à une vie positive pour toutes les personnes touchées directement ou indirectement par le VIH ».

Il a par ailleurs souligné que le Sénégal, à l’instar des autres pays, demeure « confronté à des défis significatifs dans la lutte contre le VIH/Sida », parmi lesquels le renforcement de la lutte contre le VIH au niveau communautaire.

Le renforcement de la prise en charge des enfants vivant avec le VIH fait partie de ces défis, de même que l’engagement de la jeunesse, la lutte contre la stigmatisation et la discrimination. Samba Cor Sarr a également cité la lutte contre les inégalités en matière d’accès aux soins et le renforcement des mécanismes de soutien.

Dans le contexte sénégalais, ajoute-t-il, le thème retenu cette année « prend tout son sens dans la mesure où il permet une réponse plus spécifique et plus adaptée aux besoins des communautés touchées par le VIH/Sida afin de réduire la stigmatisation et la discrimination »

Uzbekistan: Successful advocacy is reshaping HIV legislation and profession bans

“‘A woman came to us, she asked for help with the legal process’” – Interview with Evgenia Korotkova

Translated from Russian with Google translate. Scroll down for the original article. 

Do you want to know how an activist living with HIV went from a public defender in cases under Article 113 of the Criminal Code to a community expert who, after speaking at a feminist forum, is influencing the humanisation of legislation on people living with HIV in Uzbekistan?

Read about it in Svetlana Moroz’s interview with Yevgeniya Korotkova on the significant reduction of the list of prohibited professions for people living with HIV in Uzbekistan.

S.M.: Zhenya, let’s start from the beginning. In 2020, a woman who faced criminal prosecution for working as a hairdresser came to your organisation for help. Tell us about this woman, why did she come to you specifically?

E.K.: I remember very well when we first started to focus on the issue of HIV criminalisation under Article 113 of the Criminal Code. At that time, we were actively collecting cases of people who had been prosecuted under this article. At some point we came across an article on the website of the Ministry of Internal Affairs. It said that an orphaned teenager living with HIV had sexual relations with a teenage girl and she became pregnant. The main message of the article was directed at parents – they should keep an eye on their children and have preventive conversations with them.

However, the article was full of stigmatising, incorrect and distorted information. Amidst the outrage, we decided to write a post on our organisation’s page, where I gave my comments. This post also included an appeal to people living with HIV who were affected by Part 4 of Article 113 of the Criminal Code of the Republic of Uzbekistan. We informed that they could contact us for legal assistance and counselling.

The response to the post did not take long. One of the first to appeal was a woman who worked as a hairdresser. She told us that her case had already been taken to court and at the time of the investigation she didn’t even have money for a lawyer. We started looking for ways to help and were able to find money to pay for a lawyer. The lawyer took on her case and filed a request to review the materials.

In the process of discussions with the woman, we came to the conclusion that I would participate in the court as a public defender from our organisation. It was the first such experience for me. We did not know that we even had the opportunity to represent someone’s interests in this way. So we prepared a motion in which we indicated that in addition to the lawyer, the interests of the woman would be represented by a public defender – that is me.

This case was a serious test for me. We discovered a new form of assistance that we had not even realised existed before.Now we know that the involvement of a public defender can be key in such cases and really helps people.

S.M.: How did this case get to court? Who sued this woman? How did they find out about her HIV status?

E.K.: How exactly this case ended up in court, we learnt only during the trial. It turned out that a police officer came to the woman’s workplace with some list. He showed her that she was on the list and said that it included people who violated the law. In particular, it was about those who were HIV-positive and worked in a hairdresser’s shop, which was allegedly against the law.

In fact, it meant the transfer of health data to law enforcement agencies without the consent of the patient. And at the trial they did not even tried to hide this fact. During the trial, the prosecutor who was in charge of the case directly stated that the information about her HIV status had been obtained from the AIDS Centre.

S.M.: How was the trial? What was the verdict?

E.K.: The trial was held in closed mode, because the case concerned doctor-patient confidentiality and confidentiality of the diagnosis. We were very lucky that we managed to attract doctors who supported our side and defended the woman.She was strictly following the ARV regimen, so she had an undetectable viral load. In court, a doctor acted as an expert who clearly explained that under such conditions, infection was impossible. He also emphasised that there were no casualties at the time of trial.

Even the investigator pointed out in the case file that the woman did not use scissors or razors in her work – only a haircutting machine. She did not use cutting or stabbing objects that could theoretically create a threat of infection. It is important to note that the witnesses who were called from her work did not testify negatively. They confirmed that the woman performed her duties professionally and without impropriety.

In my arguments, I relied on this evidence to argue that our defendant could not have transmitted HIV infection while working as a hairdresser. During the hearing, the judge asked me, ‘As a public defender, would you, yourself,  have gone to this woman to cut your hair?’ I explained that HIV transmission would have required a number of unlikely conditions: she would have had to be off therapy, and she would have cut herself and me badly. Only then could there be a theoretical threat of infection. But even then, the probability of transmission would be extremely low.

I would like to note separately that the Makhali committee gave our defendant serious support. They filed many petitions in her defence, despite knowing her HIV status. The women’s committee also got involved in the process and filed additional motions in favour of our client.

However, the woman was still given a suspended sentence of two and a half years. This decision was taken because of the existence of Article 113, under which she was tried. The court took into account that she had a minor child, and this influenced the mitigation of the sentence.

I still remember how the judge, while announcing the verdict, emphasised the importance of our advocacy work. He said that our organisation should work on changing the list of prohibited professions because it contradicts modern legislation. These words were the starting point for a great advocacy process that took us three years. This case not only showed us the need to protect people in specific situations, but also gave a start to changes at the systemic level.

S.M.: How does this woman live now? How does she feel?

E.K.: You can imagine, she worked in her favourite profession for more than 30 years. It was a terrible blow for her – to lose the job on which she had built her whole life. Given that she had a minor child and was a single mother and the sole breadwinner in the family, all the responsibility fell on her shoulders. After the trial, it was very difficult for her to find a suitable job. She did everything she could: she cleaned houses, worked as a governess, tried a lot of professions.

It was not easy for her to recover from the trial. She underwent a long psychological rehabilitation, and we, on our part, also supported her by providing the services of a psychologist. This period was very difficult for her. When the legislation was finally changed, I was the first to send her the amended document. But unfortunately, she never returned to the profession. Instead, she started her own small business, determined to start her life with a clean slate.

We continued and still maintain a relationship with her. After the trial, she took part in the Judges’ Forum where she spoke openly and told her story. She shared how an unfair piece of legislation had affected her life and it was an act of courage and hope for change. She was motivated by the desire to help others who are HIV-positive so that they would no longer have to face the hardships and humiliation that she went through.

We realised that this case was not only about criminal law issues, but also touched on socio-economic rights. It showed how much stigma and restrictive laws can affect a person’s life, depriving them of a source of income and the ability to work in a profession. Nevertheless, her story has become an important part of our advocacy work and has helped draw attention to the need for change in the law.

S.M.: We have another milestone in this story – in 2022, Uzbekistan, the third country in Central Asia (after Tajikistan and Kyrgyzstan) to receive, among other things, a recommendation to decriminalise HIV transmission from the UN CEDAW committee. Your country received this recommendation, largely due to your participation and our joint shadow report from the community. Can we assume that the recommendations received have influenced the advocacy process in the context of HIV decriminalisation, namely the revision of the list of prohibited professions?

E.K.: I had only three minutes to address the CEDAW Committee and I remember very well how we prepared my oral statement. Every second mattered. It seems to me that all our efforts were interconnected, especially considering how seriously the state takes the recommendations of international structures. In recent years, the country has really seen progress in supporting women.

From 2019, laws have started to be adopted to ensure equal rights for men and women and to combat discrimination and violence against women. I see that the country is emphasising women’s economic independence and expanding our educational and professional opportunities. Special attention is being paid to women’s access to leadership positions, which opens up new perspectives for us.

I believe that the final recommendations of the CEDAW Committee may have played a role in the state’s attention to the list of prohibited professions. This list has long been in need of revision, as it restricted women’s rights and hindered their professional development. The work in this direction is ongoing, and I hope that our efforts will help more women to avoid such restrictions and achieve justice.

S.M.: So, the year is 2024. Something has happened that probably you and we ourselves did not expect – the list of prohibited professions for people living with HIV in Uzbekistan has been changed (reduced) by the order of the Minister of Health. How did this become possible?

E.K.: According to the new order, HIV-positive people can now work as dentists, as long as they are not involved in surgical interventions. This move was a significant change, especially for us, as we had a case where a man working as a dental technician was prosecuted just because of his HIV status.

In November 2023, there was a big feminist forum where I gave a speech that was well received. One of the newspapers wrote about me as a leader living with HIV. After this publication, the presidential administration became interested in my story. I was invited to a meeting to discuss the most pressing issues facing women and people living with HIV.

At the meeting, I tried to use this opportunity to draw attention to the list of prohibited professions. I explained that this piece of legislation is not only of no public benefit, but also destroys people’s lives by restricting their ability to work in their profession. My arguments resonated. I had the impression that I was able to convince them that this order had long ago lost its relevance.

In the course of the discussion, it became clear that the officials with whom I spoke had a progressive approach and were ready to support the initiative to review and amend the list of prohibited professions. Their readiness for dialogue and understanding of the importance of the issue inspired me and gave me hope for further positive changes.

S.M.: Do I understand correctly that officials of the Ministry of Health had no resistance to this initiative? Before that, doctors used to hand over data on people with HIV to the police. I can’t forget the case when a woman (nurse) was simply summoned to the district department in the middle of the working day, checked the list of her contacts in the phone book, asked who she was sleeping with, threatened with an article, etc. – such ‘preventive’ humiliating methods.

E.K.: After the adoption of the new, shortened list of prohibited professions, we started to conduct trainings for medical workers. In the process, we encountered some resistance – among the participants there were epidemiologists who did not support the changes. They argued that the risk of HIV transmission still existed despite the new data and international standards. Such statements rather demonstrated their lack of awareness of the issue. Later, their colleagues, doctors with more experience, even advised them to refrain from making such statements in order not to mislead other participants.

Particularly important for us was the participation of the chief epidemiologist of the Republican AIDS Centre in these trainings. He presented information about the changes in the list of professions in the most professional and accessible way possible, which helped to reduce mistrust and resistance among health workers. His presentations played an important role in disseminating correct knowledge.

We also held meetings with the staff of the Ministry of Internal Affairs, in particular with representatives of the moral department, which supervised cases related to Article 113 of the Criminal Code. They were the ones who had previously initiated cases against HIV-positive hairdressers, leading to their criminal prosecution. These discussions were important for us because they allowed us to convey to law enforcement officials that the old norms no longer meet modern realities and only contribute to the stigmatisation of people living with HIV.

S.M.: We know that you worked on the bill that has already been submitted from your NGO Ishonch va Haet to the parliament. You have also received a response, thankfully. How do you assess the prospect of amending the Criminal Code with regard to Article 113?

E.K.: I am an optimist and I am sure that the changes will definitely happen, it is only a matter of time. It is already evident that people involved in legislative reforms realise that some laws are outdated and need to be revised. It is good to see that the country is actively aiming to update the legislative systems and bring them in line with modern realities.

I believe that our voice will be heard. Especially since these changes are being called for not only by civil society, but also by the scientific and medical community, as well as international organisations. These are not just recommendations invented in a narrow circle of activists/v – they are a global agenda, reflecting progress and the realisation that HIV infection is now a chronic disease that can be lived with thanks to affordable and effective treatment.

Importantly, positive developments are already taking place in the country. Progressive initiatives on gender equality, protection of the rights of women and people living with HIV demonstrate the state’s commitment to improving the quality of life of its citizens. These changes give me confidence that the reform will also affect the legislative acts that still restrict people in their rights and freedom of choice of profession.

I believe in my state and its rational approach. I see that there is a dialogue going on and it is bearing fruit. We are moving towards change, and I am convinced that it will be positive for everyone.

S.M.: One last question. Looking back at your path from a public defender to a community expert who submits a draft of legislative changes to the parliament, tell us how you came to this? Who/what is behind it?

E.K.: Behind all our efforts there are always people – people who need help and support. I myself am a woman living with HIV, and although I have not experienced criminalisation directly, I have had many examples of stigma and discrimination in my life. One of the people I defended in court is now an employee of our organisation. It is stories like these that give me the strength and inspiration to keep going.

Deep down, I dream of a perfect world. No one can stop me from at least trying to make it so. My main motivation has always been to ensure that people living with HIV no longer face discrimination and stigma, that their rights are respected and not violated just because of their diagnosis.

I am convinced that the state should work in the interests of those who live in it. And today we really have good prospects.We see the existence of political will and civil society, which is actively involved in promoting change and has real weight.This is a favourable time for change.

The state is showing a desire to hear us and understand our problems. Moreover, we are not just talking about problems, we are helping to find solutions, and this process becomes an additional motivation for me. When we are listened to and really heard, it is inspiring. It means that our efforts matter and lead to change.

Order of the Minister of Health of the Republic of Uzbekistan

On approval of the List of types of professional activities prohibited for persons infected with the human immunodeficiency virus

[Registered by the Ministry of Justice of the Republic of Uzbekistan on May 07, 2014. Registration № 2581]

Order of the Minister of Health of the Republic of Uzbekistan

On approval of the List of types of professional activities prohibited for persons infected with the human immunodeficiency virus

[Registered by the Ministry of Justice of the Republic of Uzbekistan on February 19, 2024. Registration № 3497]

Types of professional activities prohibited for persons infected with the human immunodeficiency virus

List:

1. Professions related to the procurement and processing of blood and its components.

2. Professions related to the production of blood and its components, sperm and breast milk.

3. Professions related to blood transfusion.

4. Professions related to the following medical procedures: injections; dialysis; venesection;, catheterization.

5. Professions related to cosmetic and plastic surgery.

6. Professions related to dental procedures.

7. Professions related to childbirth.

8. Professions related to abortions and other gynecological operations.

9. Professions related to hair and shaving, piercing, manicure, pedicure and tattooing.

Types of professional activities prohibited for persons infected with the human immunodeficiency virus

List:

1. Professions related to the procurement, processing and transfusion of human blood and/or its components.

2. Professions related to all types of surgery.

3. Professions related to childbirth.

4. Professions related to the following medical procedures: dialysis; venesection; catheterization.


«К нам пришла женщина, она просила помощи с судебным процессом»

Интервью с Евгенией Коротковой

Хотите узнать, как активистка, живущая с ВИЧ, прошла путь от общественной защитницы по делам по 113-й статье Уголовного Кодекса до экспертки сообщества, которая после выступления на феминистском форуме влияет на гуманизацию законодательства в отношении людей, живущих с ВИЧ, в Узбекистане?

Читайте об этом в интервью Светланы Мороз с Евгенией Коротковой, посвященном существенному сокращению списка запрещенных профессий для людей, живучих с ВИЧ, в Узбекистане.

С.М.: Женя, давай начнем с начала. В 2020 году к вам в организацию за помощью обратилась женщина, которая столкнулась с уголовным преследованием за то, что она работала парикмахером. Расскажи про эту женщину, почему она пришла именно к вам?

Е.К.: Я хорошо помню, как мы только начали уделять внимание проблеме криминализации ВИЧ в рамках статьи 113 Уголовного кодекса. Мы тогда активно собирали кейсы людей, которые были привлечены по этой статье. В какой-то момент наткнулись на статью на сайте МВД. В ней говорилось о том, что подросток-сирота, живущий с ВИЧ, вступил в половую связь с подростком девочкой, и она забеременела. Основной посыл статьи был направлен на родителей — мол, следите за детьми и проводите с ними профилактические беседы.

Однако статья была переполнена стигматизирующей, некорректной и искаженной информацией. На фоне возмущения мы решили написать пост на странице нашей организации, где я дала свои комментарии. В этом посте также было обращение к людям, живущим с ВИЧ, которые пострадали по части 4-й статьи 113 УК РУз. Мы сообщали, что они могут обратиться к нам за юридической помощью и консультациями.

Реакция на пост не заставила себя долго ждать. Одной из первых обратилась женщина, работавшая парикмахером. Она рассказала, что ее дело уже передано в суд, а на момент расследования у нее даже не было средств на адвоката. Мы начали искать возможности помочь и смогли найти деньги на оплату адвокатских услуг. Адвокатка взялась за ее дело и подал запрос на ознакомление с материалами.

В процессе обсуждений с этой женщиной мы пришли к выводу, что я буду участвовать в суде как общественная защитница от нашей организации. Это был для меня первый такой опыт. Мы не знали, что у нас вообще есть возможность представлять чьи-то интересы таким образом. И мы подготовили ходатайство, в котором указали, что помимо адвоката интересы женщины будет представлять общественная защитница — то есть я.

Этот случай стал для меня серьезным испытанием. Мы открыли для себя новую форму помощи, о существовании которой раньше даже не догадывались. Теперь мы знаем, что участие общественного(ой) защитника/цы может оказаться ключевым в подобных делах и реально помогает людям.

С.М.: Как это дело попало в суд? Кто подал в суд на эту женщину? Как они узнали о ее ВИЧ статусе?

Е.К.: То, как именно это дело оказалось в суде, мы узнали только в ходе судебного процесса. Оказалось, что к женщине на работу пришел сотрудник милиции с каким-то списком. Он показал ей, что она числится в этом списке, и заявил, что туда включены люди, нарушающие закон. В частности, речь шла о тех, кто имеет ВИЧ-положительный статус и работает в парикмахерской, что якобы противоречит закону.

Фактически это означало передачу данных о состоянии здоровья правоохранительным органам без согласия пациентки. И на суде этот факт даже не пытались скрыть. В ходе разбирательства прокурор, который вел дело, прямо заявил, что сведения о ее ВИЧ-статусе были получены из Центра СПИДа.

С.М.: Как проходил суд? Какой был приговор?

Е.К.: Судебное разбирательство проходило в закрытом режиме, поскольку дело касалось врачебной тайны и конфиденциальности диагноза. Нам очень повезло, что удалось привлечь врачей, которые поддержали нашу сторону и встали на защиту женщины. Она строго следовала режиму приёма АРВ-терапии, благодаря чему у нее была неопределяемая вирусная нагрузка. В суде в качестве эксперта выступил врач, который ясно объяснил, что при таких условиях инфицирование было невозможно. Он также подчеркнул, что на момент разбирательства не было ни одного пострадавшего.

Даже следователь указал в материалах дела, что женщина не пользовалась в работе ножницами или бритвами — только машинкой для стрижки. Она не применяла режущие и колющие предметы, которые могли бы теоретически создать угрозу заражения. Важно отметить, что свидетели, которых вызывали с ее работы, не давали негативных показаний. Они подтверждали, что женщина выполняла свои обязанности профессионально и без нарушений.

В своих прениях я опиралась на эти доказательства, утверждая, что наша подзащитная не могла передать ВИЧ-инфекцию, работая парикмахером. Во время заседания судья задал мне вопрос: «Вы, как общественная защитница, сами бы пошли стричься к этой женщине?» Я объяснила, что для передачи ВИЧ потребовался бы целый ряд маловероятных условий: она должна была бы не принимать терапию, при этом и себя, и меня сильно порезать. Только в таком случае могла бы возникнуть теоретическая угроза заражения. Но даже тогда вероятность передачи была бы крайне низкой.

Отдельно хочу отметить, что махалинский комитет оказал нашей подзащитной серьезную поддержку. Они подали множество ходатайств в ее защиту, несмотря на знание ее ВИЧ-статуса. К этому процессу также подключился комитет женщин, который внес дополнительные ходатайства в пользу нашей клиентки.

Однако женщине все же назначили условный срок — два с половиной года. Это решение было принято из-за существования статьи 113, по которой ее судили. Суд учел, что у нее есть несовершеннолетний ребенок, и это повлияло на смягчение приговора.

До сих пор помню, как судья, оглашая приговор, подчеркнул важность нашего адвокационного направления. Он сказал, что наша организация должна работать над изменением списка запрещенных профессий, потому что он противоречит современному законодательству. Эти слова стали отправной точкой для большого адвокационного процесса, который занял у нас три года. Это дело не просто показало нам необходимость защиты людей в конкретных ситуациях, но и дало старт изменениям на системном уровне.

С.М.: Как сейчас живет эта женщина? Как она себя чувствует?

Е.К.: Представляешь, она проработала в своей любимой профессии более 30 лет. Для нее это было страшным ударом — лишиться работы, на которой она строила всю свою жизнь. Учитывая, что у нее был несовершеннолетний ребенок, а она — мать-одиночка и единственная кормилица в семье, вся ответственность легла на ее плечи. После суда ей было очень тяжело найти подходящую работу. Она бралась за все, что могла: убирала дома, работала гувернанткой, перепробовала массу профессий.

Восстановиться после судебного процесса ей было нелегко. Она проходила длительную психологическую реабилитацию, и мы со своей стороны также оказывали ей поддержку, предоставив услуги психолога. Этот период был очень непростым для нее. Когда наконец изменили законодательство, я первой отправила ей документ с поправками. Но, к сожалению, она так и не вернулась в профессию. Вместо этого она открыла свой маленький бизнес, решив начать жизнь с чистого листа.

Мы продолжали и до сих пор поддерживаем с ней отношения. После суда она приняла участие в Форуме судей, где выступила с открытым лицом и рассказала свою историю. Она поделилась тем, как несправедливая законодательная норма отразилась на ее жизни, и это стало для нее своего рода актом мужества и надеждой на перемены. Её мотивацией было желание помочь другим людям с ВИЧ-положительным статусом, чтобы они больше не сталкивались с теми трудностями и унижениями, через которые прошла она.

Мы понимали, что этот случай касался не только вопросов уголовного права, но и затрагивал социально-экономические права. Он показал, как сильно стигматизация и ограничительные законы могут повлиять на жизнь человека, лишив его источника дохода и возможности работать по профессии. Тем не менее, ее история стала важной частью нашей адвокационной работы и помогла привлечь внимание к необходимости изменений в законодательстве.

С.М.: У нас есть еще одна веха в этой истории — в 2022 году, Узбекистан, третья страна в ЦА (после Таджикистана и Кыргызстана), которая среди прочего получила рекомендацию декриминализировать передачу ВИЧ от комитета ООН CEDAW. Твоя страна получила эту рекомендацию, во многом, благодаря твоему участию и нашему совместному теневому отчету от сообщества. Можем ли мы считать, что полученные рекомендации повлияли на адвокационные процесс в контексте декриминализации ВИЧ, а именно пересмотр списка запрещенных профессий?

Е.К.: У меня было всего три минуты на выступление перед членами Комитета CEDAW, и я прекрасно помню, как мы готовили мое устное заявление. Каждая секунда имела значение. Мне кажется, что все наши усилия были взаимосвязаны, особенно с учетом того, насколько серьезно государство относится к рекомендациям международных структур. В последние годы в стране действительно заметен прогресс в вопросах поддержки женщин.

С 2019 года начали приниматься законы, направленные на обеспечение равноправия мужчин и женщин и борьбу с дискриминацией и насилием в отношении женщин. Я вижу, что в стране делается акцент на экономическую независимость женщин и расширение наших возможностей в образовании и профессиональной деятельности. Особое внимание уделяется доступу женщин к руководящим должностям, что открывает новые перспективы для нас.

Я верю, что заключительные рекомендации Комитета CEDAW могли сыграть свою роль в том, что государство обратило внимание на перечень запрещенных профессий. Этот список давно нуждался в пересмотре, так как он ограничивал права женщин и препятствовал их профессиональному развитию. Работа в этом направлении продолжается, и я надеюсь, что наши усилия помогут еще большему числу женщин избежать подобных ограничений и добиться справедливости.

С.М.: Итак, 2024 год. Случилось то, что, наверное, вы и мы сами не ожидали – приказом министра здравоохранения изменен (сокращен) список запрещенных профессий для людей, живущих с ВИЧ, в Узбекистане. Как это стало возможным?

Е.К.: Согласно новому приказу, ВИЧ-положительные люди теперь могут работать стоматологами, если они не занимаются хирургическими вмешательствами. Этот шаг стал значимым изменением, особенно для нас, поскольку у нас был случай, когда мужчину, работающего зубным техником, привлекли к уголовной ответственности только из-за его ВИЧ-статуса.

В ноябре 2023 года прошел большой феминистский форум, на котором я выступила с речью, вызвавшей широкий отклик. В одной из газет обо мне написали как о лидерке, живущей с ВИЧ. После этой публикации моей историей заинтересовались в администрации президента. Меня пригласили на встречу, чтобы обсудить наиболее острые проблемы, с которыми сталкиваются женщины и люди, живущие с ВИЧ.

На встрече я постаралась использовать этот шанс, чтобы привлечь внимание к списку запрещенных профессий. Я объяснила, что этот законодательный акт не только не приносит общественной пользы, но и разрушает жизни людей, ограничивая их возможности работать по профессии. Мои доводы нашли отклик. У меня сложилось впечатление, что я смогла убедить их в том, что этот приказ давно утратил свою актуальность.

В процессе обсуждения стало очевидно, что чиновники, с которыми я общалась, проявили прогрессивный подход и готовы поддержать инициативу по пересмотру и изменению списка запрещенных профессий. Их готовность к диалогу и понимание важности вопроса вдохновили меня и дали надежду на дальнейшие позитивные изменения.

С.М.: Я правильно понимаю, что у чиновников Минздрава не было сопротивления этой инициативе? До этого врачи передавали милиции данные о людях с ВИЧ. Не могу забыть случай, когда женщину (медсестру) просто посредине рабочего дня вызвали в райотдел, проверяли список ее контактов в телефонной книге, спрашивали с кем она спит, угрожали статьей, и т.д. — такие «профилактические» унизительные методы.

Е.К.: После принятия нового, сокращенного списка запрещенных профессий мы начали проводить тренинги для медицинских работников. В процессе мы столкнулись с определенным сопротивлением — среди участников встречались эпидемиологи, которые не поддерживали изменения. Они утверждали, что риск передачи ВИЧ все равно существует, несмотря на новые данные и международные стандарты. Такие заявления, скорее, демонстрировали их недостаточную осведомленность в вопросе. Позже их коллеги, врачи с большим опытом, даже советовали им воздержаться от таких высказываний, чтобы не вводить в заблуждение других участников.

Особенно важным для нас стало участие главного эпидемиолога Республиканского центра СПИД в этих тренингах. Он представил информацию об изменениях списка профессий максимально профессионально и доступно, что помогло снизить уровень недоверия и сопротивления среди медработников. Его выступления сыграли важную роль в распространении правильных знаний.

Мы также проводили встречи с сотрудниками МВД, в частности с представителями нравственного отдела, который курировал дела, связанные со статьей 113 УК. Именно они ранее инициировали дела против ВИЧ-положительных парикмахеров, приводя к их уголовному преследованию. Эти обсуждения были для нас важны, поскольку позволили донести до сотрудников правоохранительных органов, что старые нормы больше не отвечают современным реалиям и только способствуют стигматизации людей, живущих с ВИЧ.

С.М.: Мы знаем, что ты работала над законопроектом, который уже подан от вашей неправительственной организации «Ишонч ва Хает» в парламент. Вы еще ответ получили, с благодарностью. Как ты оцениваешь перспективу внесения изменений в УК в отношении 113-й статьи?

Е.К.: Я — оптимистка и уверена, что изменения непременно произойдут, это лишь вопрос времени. Уже сейчас видно, что люди, занимающиеся реформами в области законодательства, осознают, что некоторые законы устарели и требуют пересмотра. Приятно видеть, что страна активно нацелена на обновление законодательных систем и приведение их в соответствие с современными реалиями.

Я верю, что наш голос будет услышан. Тем более, что к этим изменениям призывает не только гражданское общество, но и научное и медицинское сообщество, а также международные организации. Это не просто рекомендации, придуманные в узком кругу активисток/в — это глобальная повестка, отражающая прогресс и понимание того, что ВИЧ-инфекция сегодня является хроническим заболеванием, с которым можно жить благодаря доступному и эффективному лечению.

Важно, что в стране уже происходят позитивные сдвиги. Прогрессивные инициативы в области гендерного равенства, защиты прав женщин и людей, живущих с ВИЧ, демонстрируют стремление государства к улучшению качества жизни своих граждан. Эти перемены дают мне уверенность, что реформа затронет и законодательные акты, которые до сих пор ограничивают людей в их правах и свободе выбора профессии.

Я верю в свое государство и его рациональный подход. Вижу, что идет диалог, и он приносит плоды. Мы движемся в сторону перемен, и я убеждена, что они будут положительными для всех.

С.М.: Последний вопрос. Оглядываясь на твой путь от общественной защитницы до экспертки сообщества, которая подает в парламент проект законодательных изменений, расскажи, как ты к такому пришла? Кто/что за этим стоит?

Е.К.: За всеми нашими усилиями всегда стоят люди — люди, которые нуждаются в помощи и поддержке. Я сама женщина, живущая с ВИЧ, и, хотя напрямую не сталкивалась с криминализацией, в моей жизни было немало примеров стигмы и дискриминации. Один из тех, кого я защищала в суде, теперь стал сотрудником нашей организации. И такие истории дают мне силы и вдохновение двигаться дальше.

В глубине души я мечтаю об идеальном мире. Никто не может запретить мне хотя бы пытаться сделать его таким. Моя главная мотивация всегда была в том, чтобы люди, живущие с ВИЧ, больше не сталкивались с дискриминацией и стигмой, чтобы их права уважались и не нарушались только из-за их диагноза.

Я убеждена, что государство должно работать в интересах тех, кто в нем живет. И сегодня у нас действительно есть хорошие перспективы. Мы видим наличие политической воли и гражданского общества, которое активно участвует в продвижении изменений и имеет реальный вес. Это благоприятное время для перемен.

Государство проявляет желание услышать нас и понять наши проблемы. Более того, мы не просто говорим о проблемах, мы помогаем находить решения, и этот процесс становится для меня дополнительной мотивацией. Когда нас слушают и действительно слышат — это вдохновляет. Это значит, что наши усилия имеют значение и ведут к изменениям.

Приказ Министра здравоохранения Республики Узбекистан

Об утверждении Перечня видов профессиональной деятельности, запрещенных для лиц, зараженных вирусом иммунодефицита человека

[Зарегистрирован Министерством юстиции Республики Узбекистан 07 мая 2014 года. Регистрационный № 2581]

Приказ Министра здравоохранения Республики Узбекистан

Об утверждении Перечня видов профессиональной деятельности, запрещенных для лиц, зараженных вирусом иммунодефицита человека

[Зарегистрирован Министерством юстиции Республики Узбекистан 19 февраля 2024 года. Регистрационный № 3497]

Виды профессиональной деятельности, запрещенные лицам, инфицированным вирусом иммунодефицита человека

СПИСОК

1. Профессии, связанные с заготовкой и переработкой крови и ее компонентов.

2. Профессии, связанные с получением крови и ее компонентов, спермы и грудного молока.

3. Профессии, связанные с переливанием крови.

4. Профессии, связанные со следующими медицинскими процедурами: инъекции; диализ; венесекция; катетеризация.

5. Профессии, связанные с косметическими и пластическими операциями.

6. Профессии, связанные со стоматологическими процедурами.

7. Профессии, связанные с родами.

8. Профессии, связанные с абортами и другими гинекологическими операциями.

9. Профессии, связанные с прической и бритьем, пирсингом, маникюром, педикюром и татуировкой.

Виды профессиональной деятельности, запрещенные лицам, инфицированным вирусом иммунодефицита человека

СПИСОК

1. Профессии, связанные с заготовкой, переработкой и переливанием крови человека и (или) ее компонентов.

2. Профессии, связанные со всеми видами хирургии.

3. Профессии, связанные с родами.

4. Профессии, связанные со следующими медицинскими процедурами: диализ; венесекция; катетеризация.